Sickle Cell Disease Association of America - NW Louisiana Chapter
Standards For Charity Accountability
Governance
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Board Oversight
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Board Size
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Board Meetings
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Board Compensation
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Conflict of Interest
Measuring Effectiveness
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Effectiveness Policy
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Effectiveness Report
Finances
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Program Expenses
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Fundraising Expenses
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Accumulating Funds
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Audit Report
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Detailed Expense Breakdown
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Accurate Expense Reporting
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Budget Plan
Fundraising & Info
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Truthful Materials
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Annual Report
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Website Disclosures
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Donor Privacy
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Cause Marketing Disclosures
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Complaints
Sickle Cell Disease Association of America - NW Louisiana Chapter does not meet the following 4 Standards for Charity Accountability:
Standard 8 (Program Service Expense Ratio)
Spend at least 65% of its total expenses on program activities.
Sickle Cell Disease Association of America - NW Louisiana Chapter does not meet this standard because:
Standard 9 (Fund Raising Expense Ratio)
Spending should be no more than 35% of related contributions on fund raising. Related contributions include donations, legacies, and other gifts received as a result of fund raising efforts.
Sickle Cell Disease Association of America - NW Louisiana Chapter does not meet this standard because:
Standard 17 (Web Site Disclosures)
Include on any charity websites that solicit contributions, the same information that is recommended for annual reports, as well as the mailing address of the charity and electronic access to its most recent IRS Form 990.
Sickle Cell Disease Association of America - NW Louisiana Chapter does not meet this standard because:
At time of assessment, organization’s financial disclosure information as specified by this standard was not available to donors at their website’s Donate page.
Standard 18 (Privacy for Written Appeals & Internet Privacy)
Address privacy concerns of donors by (a) providing in written appeals, at least annually, a means (e.g., such as a check off box) for both new and continuing donors to inform the charity if they do not want their name and address shared outside the organization, (b) providing a clear, prominent and easily accessible privacy policy on any of its websites that tells visitors (i) what information, if any, is being collected about them by the charity and how this information will be used, (ii) how to contact the charity to review personal information collected and request corrections, (iii) how to inform the charity (e.g., a check off box) that the visitor does not wish his/her personal information to be shared outside the organization, and (iv) what security measures the charity has in place to protect personal information.
Sickle Cell Disease Association of America - NW Louisiana Chapter does not meet this standard because:
At time of assessment, a privacy policy meeting all of the criteria of this standard was not accessible on the organization's website.
The BBB Wise Giving Alliance requested but did not receive complete information from the organization and is unable to verify the organization's compliance with the following Standard(s) for Charity Accountability: 1, 2, 3, 4, 5, 6, 7, 11, 12, 13, 14, 15, 16, 19
Sickle Cell Disease Association of America - NW Louisiana Chapter meets the remaining 2 Standards for Charity Accountability.
Stated Purpose:
The mission is to assist individuals with sickle cell conditions live stable and productive lives, and promote an awareness of sickle cell disease through leadership, education, and programs to aid individuals with sickle cell disease.
Year, State Incorporated:
1975, LA
CASE MANAGEMENT: The chapter links sickle cell clients and their families with resources within the community that can address needs that fall outside the scope of the organization.
CLINICAL SUPPORT: The chapter supports children attending the Feist-Weiller Pediatric Hematology Oncology Center.
EDUCATIONAL: The chapter provides educational awareness to our clients with a diagnosis of sickle cell disease or trait and, to the parents/guardians of clients, as well as to the public.
LIFE ASSISTANCE: The chapter assists adult clients with services to ease some of the additional expenses they incur.
For the year ended December 31, 2023, Sickle Cell Disease Association of America - NW Louisiana Chapter's program expenses were:
| Program Services | $44,744 |
| Total Program Expenses | $44,744 |
Chair's Profession / Business Affiliation
Not disclosed
Board Size
Not disclosed
Paid Staff Size
1
This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on Sickle Cell Disease Association of America - NW Louisiana Chapter's audited financial statements for the year ended December 31, 2023.
Source of Funds
| Grants | $121,350 |
| Fundraising | $88,137 |
| Contributions | $20,879 |
| interest Income | $29 |
| Total Income | $230,395 |
Programs: 17% Fundraising: 22% Administrative: 60%
| Total Income | $230,395 |
| Total expenses: | $263,328 |
| Program expenses | $44,744 |
| Fundraising expenses | $57,952 |
| Administrative expenses | $158,635 |
| Other expenses | $1,997 |
| Income in Excess of Expenses | $-32,933 |
| Beginning Net Assets | $147,889 |
| Other Changes In Net Assets | $0 |
| Ending Net Assets | $114,956 |
| Total Liabilities | $9,805 |
| Total Assets | $124,761 |
An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.
This report is not to be used for fundraising or promotional purposes.
RELATED CONTENT
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Meets Standards
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Standards Not Met
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Did Not Disclose
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Review in Progress
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Unable to Verify
Report completed by:
BBB Serving Northeast and Central Louisiana and the Ark-La-Tex