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CHARITY REVIEW
Issued: May 2025 Expires: May 2027

MPN Research Foundation

Standards Not Met
Standards Not Met
6 7 14 16
(773) 977-7216
Post Office Box 2690
Carol Stream, IL, 60132
https://mpnresearchfoundation.org/
📄 Full Report 🖨️ Print 📋 BBB Charity Standards

Standards For Charity Accountability

Governance

  1. Board Oversight
  2. Board Size
  3. Board Meetings
  4. Board Compensation
  5. Conflict of Interest

Measuring Effectiveness

  1. Effectiveness Policy
  2. Effectiveness Report

Finances

  1. Program Expenses
  2. Fundraising Expenses
  3. Accumulating Funds
  4. Audit Report
  5. Detailed Expense Breakdown
  6. Accurate Expense Reporting
  7. Budget Plan

Fundraising & Info

  1. Truthful Materials
  2. Annual Report
  3. Website Disclosures
  4. Donor Privacy
  5. Cause Marketing Disclosures
  6. Complaints

MPN Research Foundation does not meet the following 4 Standards for Charity Accountability:

Standard 6 (Board Policy on Effectiveness)
Have a board policy of assessing, no less than every two years, the organization's performance and effectiveness and of determining future actions required to achieve its mission.

MPNRF does not meet this Standard because:

  • The board of directors does not have a written policy stating that, at least every two years, an appraisal be done assessing the organization’s performance and effectiveness and determining future actions required to achieve its mission.

Standard 7 (Board Approval of Written Report on Effectiveness)
Submit to the organization's governing body, for its approval, a written report that outlines the results of the aforementioned performance and effectiveness assessment and recommendations for future actions.

MPN RF does not meet this Standard because:

  • The organization has not completed an effectiveness assessment in the last two years.

Standard 14 (Budget)
Have a board-approved annual budget for its current fiscal year, outlining projected expenses for major program activities, fund raising, and administration.

MPNRF does not meet this Standard because, when the organization provided 2025 budget information, it indicated that the budget:

  • Did not identify total projected program service expenses.
  • Did not identify total projected fundraising expenses.
  • Did not identify total projected administrative expenses.

Standard 16 (Annual Report)
Have an annual report available to all, on request, that includes: (a) the organization's mission statement, (b) a summary of the past year's program service accomplishments, (c) a roster of the officers and members of the board of directors, (d) financial information that includes (i) total income in the past fiscal year, (ii) expenses in the same program, fund raising and administrative categories as in the financial statements, and (iii) ending net assets.

MPNRF does not meet this Standard because:

  • The organization states it does not have an annual report covering activities conducted in 2023.

The BBB Wise Giving Alliance requested but did not receive complete information from the organization and is unable to verify the organization's compliance with the following Standard(s) for Charity Accountability: 1, 15

MPN Research Foundation meets the remaining 14 Standards for Charity Accountability.

Stated Purpose:
"to stimulate original research in pursuit of new treatments — and eventually a cure — for the blood cancers essential thrombocythemia, polycythemia vera, and myelofibrosis, known collectively as myeloproliferative neoplasms (MPN)." Through a combination of investing in innovative research, advocating for the patient voice, and convening the global MPN community, we bring together patients, researchers, and industry around the common goal of realizing new treatment options and, ultimately, cures for MPNs.

Year, State Incorporated:
1999, IL

MPN Research Foundation (MPNRF) reports that it funds research to find a cure for rare blood disorders and cancer. The organization also advocates for research funding for MPN and seeks to provide education and support to individuals diagnosed with MPN. MPNRF states that it offers support groups, online and in-person throughout the United States. The organization also produces free patient education materials made available through MPNRF's website.

For the year ended December 31, 2023, MPN Research Foundation's program expenses were:

Program services: $2,689,052

Total Program Expenses: $2,689,052

Chief Executive
Kapila Viges, Chief Executive Officer

Compensation*
$321,006

Chair of the Board
Barbara Van Husen

Chair's Profession / Business Affiliation
Retired

Board Size
13

Paid Staff Size
17

*2023 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.

Method(s) Used:
Direct mail appeals, Internet, Direct mail appeals, Radio, Special events

Fundraising costs were 15% of related contributions. (Related contributions, which totaled $2,438,627, are donations received as a result of fundraising activities.)

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on MPN Research Foundation's audited financial statements for the year ended December 31, 2023.

Source of Funds
Contributions $2,295,351
Investment income $737,151
In-kind contributions $143,276
Total Income $3,175,778

Programs: 79% Fundraising: 11% Administrative: 10%

Total Income $3,175,778
Total expenses: $3,401,292
  Program expenses $2,689,052
  Fundraising expenses $377,626
  Administrative expenses $334,614
  Other expenses $0
Income in Excess of Expenses $-225,514
Beginning Net Assets $6,671,233
Other Changes In Net Assets $0
Ending Net Assets $6,445,719
Total Liabilities $1,471,002
Total Assets $7,916,721

Note: According to the organization's 2023 audited financial statements, MPNRF received in-kind gifts totaling $143,276 in the form of advertising ($140,936) and legal services ($2,340).

An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.

This report is not to be used for fundraising or promotional purposes.

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Report completed by:
BBB Wise Giving Alliance