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CHARITY REVIEW
Issued: October 2024 Expires: October 2026

Parent Project for Muscular Dystrophy Research

Accredited Charity
Accredited Charity

Meets Standards
Accreditation seal
(800) 714-5437
1012 14th Street NW, Suite 500
Washington, DC, 20005
https://parentprojectmd.org
📄 Full Report 🖨️ Print 📋 BBB Charity Standards

Standards For Charity Accountability

Governance

  1. Board Oversight
  2. Board Size
  3. Board Meetings
  4. Board Compensation
  5. Conflict of Interest

Measuring Effectiveness

  1. Effectiveness Policy
  2. Effectiveness Report

Finances

  1. Program Expenses
  2. Fundraising Expenses
  3. Accumulating Funds
  4. Audit Report
  5. Detailed Expense Breakdown
  6. Accurate Expense Reporting
  7. Budget Plan

Fundraising & Info

  1. Truthful Materials
  2. Annual Report
  3. Website Disclosures
  4. Donor Privacy
  5. Cause Marketing Disclosures
  6. Complaints

Parent Project for Muscular Dystrophy Research meets the 20 Standards for Charity Accountability.

Stated Purpose:
"to end Duchenne; to accelerate research, impact policy, demand optimal care for every single family, and strive to ensure access to approved therapies."

Year, State Incorporated:
1997, OH

Parent Project for Muscular Dystrophy (PPMD) works to end Duchenne muscular dystrophy by funding research, spreading awareness, and providing care and services to people impacted by the disease. The organization educates parents, healthcare providers, and the general public about muscular dystrophy through conferences, pamphlets, and brochures. PPMD reports that it provides free genetic testing and counseling to people with Duchenne or Becker muscular dystrophy who otherwise could not afford genetic testing.

For the year ended December 31, 2023, Parent Project for Muscular Dystrophy Research's program expenses were:

Research $7,116,727
Education $1,933,388
Advocacy $1,137,597
Total Program Expenses $10,187,712

Chief Executive
Patricia A. Furlong, President and Chief Executive Officer

Compensation*
$386,779

Chair of the Board
Gretchen Egner

Chair's Profession / Business Affiliation
Teacher

Board Size
15

Paid Staff Size
26

*2023 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.

Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Direct mail appeals

Fundraising costs were 4% of related contributions. (Related contributions, which totaled $12,530,382, are donations received as a result of fundraising activities.)

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on Parent Project for Muscular Dystrophy Research's audited financial statements for the year ended December 31, 2023.

Source of Funds
Gain on sale of donated securities $387
Other $10,342
Other meetings and conferences $20,000
Recovery of previously awarded grant $40,823
Interest and dividends $88,182
Unrealized gain on investments $157,348
Conference income $587,511
Fees for service $603,458
Special events, net $2,503,635
Contributions and grants $10,026,747
Total Income $14,038,433

Programs: 84% Fundraising: 5% Administrative: 11%

Total Income $14,038,433
Total expenses: $12,112,486
  Program expenses $10,187,712
  Fundraising expenses $552,547
  Administrative expenses $1,372,227
  Other expenses $0
Income in Excess of Expenses $1,925,947
Beginning Net Assets $7,880,238
Other Changes In Net Assets $0
Ending Net Assets $9,806,185
Total Liabilities $634,715
Total Assets $10,440,900

An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.

This report is not to be used for fundraising or promotional purposes.

RELATED CONTENT

Report completed by:
BBB Wise Giving Alliance