Spina Bifida Resource Network meets the 20 Standards for Charity Accountability.
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Year, State Incorporated
1987, NJ
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Stated Purpose
"to empower the lives of people with spina bifida, and promote the prevention of spina bifida through advocacy, education, collaboration, public awareness, research and programs."
Spina Bifida Resource Network (SBRN) reports that it provides individualized services to children and adults with spina bifida and other disabilities in their homes and communities. Services include: care coordination, trainings by nurses, financial assistance, and educational and recreational events, which seek to increase medical knowledge, self-care, and autonomy. The organization's family support program provides personalized instructional training and assistance on topics such as catheterization, skin integrity and wound care, treatment regimens, and accessing medical, community, and public services. SBRN offers training sessions for school personnel to assist students with disabilities. The organization also provides financial relief to families with non-reimbursed medical expenses.
For the year ended December 31, 2018, Spina Bifida Resource Network's program expenses were:
Program services |
$256,580 |
Total Program Expenses: |
$256,580 |
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Chief Executive
Roberta Kestenbaum, PhD, Executive Director
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Compensation*
$60,840
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Chair of the Board
Millie Gonzalez
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Chair's Profession / Business Affiliation
Public Relations, Kean University
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Board Size
8
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Paid Staff Size
5
*2018 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Invitations to fund raising events, Membership appeals, Cause- related marketing (affinity credit cards, consumer product sales, etc.)
Fundraising costs were 4% of related contributions. (Related contributions, which totaled $302,052 are donations received as a result of fundraising activities.)
This organization is tax-exempt under section 501(c) (3) of the Internal Revenue Code.It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on Spina Bifida Resource Network's audited financial statements for the year ended December 31, 2018.
Source of Funds |
Grants |
$247,593 |
Contributions and member dues |
$49,499 |
Special events, net |
$4,960 |
Program registration fees |
$621 |
Realized and unrealized losses on investments |
($19,178) |
Total Income |
$283,495 |
- Programs: 83%
- Administrative: 14%
- Fundraising: 3%
Total Income |
$283,495 |
Program expenses |
$256,580 |
Fundraising expenses |
$11,617 |
Administrative expenses |
$41,770 |
Other expenses |
$0 |
Total expenses: |
$309,967 |
Income in Excess of Expenses |
$-26,472 |
Beginning Net Assets |
$623,665 |
Other Changes In Net Assets |
$0 |
Ending Net Assets |
$597,193 |
Total Liabilities |
$10,023 |
Total Assets |
$607,216 |