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CHARITY REVIEW
Issued: June 2025 Expires: June 2027

Pulmonary Fibrosis Foundation

Accredited Charity
Accredited Charity

Meets Standards
Accreditation seal
(844) 825-5733
223 West Jackson Boulevard, Suite 350
Chicago, IL, 60606
https://www.pulmonaryfibrosis.org
📄 Full Report 🖨️ Print 📋 BBB Charity Standards

Standards For Charity Accountability

Governance

  1. Board Oversight
  2. Board Size
  3. Board Meetings
  4. Board Compensation
  5. Conflict of Interest

Measuring Effectiveness

  1. Effectiveness Policy
  2. Effectiveness Report

Finances

  1. Program Expenses
  2. Fundraising Expenses
  3. Accumulating Funds
  4. Audit Report
  5. Detailed Expense Breakdown
  6. Accurate Expense Reporting
  7. Budget Plan

Fundraising & Info

  1. Truthful Materials
  2. Annual Report
  3. Website Disclosures
  4. Donor Privacy
  5. Cause Marketing Disclosures
  6. Complaints

Pulmonary Fibrosis Foundation meets the 20 Standards for Charity Accountability.

Stated Purpose:
"to accelerate the development of new treatments and ultimately a cure for pulmonary fibrosis."

Year, State Incorporated:
2000, CO

Pulmonary Fibrosis Foundation (PFF) reports that it works to improve patient care and provides support and education resources for individuals diagnosed with pulmonary fibrosis, caregivers, family members, and health care providers. PFF's programs include the PFF Care Center Network, PFF Registry, PFF Scholars, PFF Help Center, PFF Ambassadors, PFF Summit, disease education materials, a webinar series, and support groups. The PFF Care Center Network connects medical centers throughout the United States that specialize in treating fibrotic lung diseases. The PFF Registry is a nationwide research program that encapsulates two databases: the PFF Patient Registry and PFF Community Registry. Combined, the two databases provide data on patients diagnosed with pulmonary fibrosis or interstitial lung disease, as well as their caregivers and biological family members. The PFF Ambassador program seeks to empower patients and caregivers to speak for the pulmonary fibrosis community and promote disease awareness. The organization also funds research through the PFF Scholars program to support early-career investigators with the goal of advancing research that could translate into successful therapies for pulmonary fibrosis. The PFF Summit is a biennial international health care conference on pulmonary fibrosis and interstitial lung disease with a goal of fostering a collaborative environment to improve education and awareness of pulmonary fibrosis and identify new approaches to treat and cure the disease.

For the year ended June 30, 2024, Pulmonary Fibrosis Foundation's program expenses were:

PFF Registry $1,527,128
PFF Summit $1,213,499
Research grants $902,682
Education $856,356
Outreach and awareness $843,940
Program support $800,895
Care Center Network $646,622
Support groups $336,695
Legislative advocacy $211,715
Total Program Expenses $7,339,532

Chief Executive
Scott Staszak, President and Chief Executive Officer

Compensation*
$341,001

Chair of the Board
Wayne T. Pan, MD,PhD

Chair's Profession / Business Affiliation
Chief Executive Officer, Semler Scientific

Board Size
13

Paid Staff Size
35

*2023 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.

Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Direct mail appeals, Radio

Fundraising costs were 32% of related contributions. (Related contributions, which totaled $6,605,471, are donations received as a result of fundraising activities.)

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on Pulmonary Fibrosis Foundation's audited financial statements for the year ended June 30, 2024.

Source of Funds
Contributions $3,234,872
Program service fees $2,277,281
Special events $1,746,570
Sponsorships $1,205,248
Interest and dividends $485,349
Realized and unrealized investments, net $427,476
In-kind contributions $418,781
Registration $340,634
Miscellaneous income $5,901
Total Income $10,142,112

Programs: 70% Fundraising: 20% Administrative: 9%

Total Income $10,142,112
Total expenses: $10,422,647
  Program expenses $7,339,532
  Fundraising expenses $2,113,613
  Administrative expenses $969,502
  Other expenses $0
Income in Excess of Expenses $-280,535
Beginning Net Assets $11,735,249
Other Changes In Net Assets $0
Ending Net Assets $11,454,714
Total Liabilities $3,865,441
Total Assets $15,320,155

Note: According to PFF's audited financial statements for the year ended June 30, 2024, the organization received $418,781 in contributed goods and services including advertising ($412,122), and food and beverages ($6,659).

An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.

This report is not to be used for fundraising or promotional purposes.

RELATED CONTENT

Report completed by:
BBB Wise Giving Alliance