Pulmonary Fibrosis Foundation
Meets Standards
Standards For Charity Accountability
Governance
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Board Oversight
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Board Size
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Board Meetings
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Board Compensation
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Conflict of Interest
Measuring Effectiveness
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Effectiveness Policy
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Effectiveness Report
Finances
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Program Expenses
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Fundraising Expenses
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Accumulating Funds
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Audit Report
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Detailed Expense Breakdown
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Accurate Expense Reporting
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Budget Plan
Fundraising & Info
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Truthful Materials
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Annual Report
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Website Disclosures
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Donor Privacy
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Cause Marketing Disclosures
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Complaints
Pulmonary Fibrosis Foundation meets the 20 Standards for Charity Accountability.
Stated Purpose:
"to accelerate the development of new treatments and ultimately a cure for pulmonary fibrosis."
Year, State Incorporated:
2000, CO
Pulmonary Fibrosis Foundation (PFF) reports that it works to improve patient care and provides support and education resources for individuals diagnosed with pulmonary fibrosis, caregivers, family members, and health care providers. PFF's programs include the PFF Care Center Network, PFF Registry, PFF Scholars, PFF Help Center, PFF Ambassadors, PFF Summit, disease education materials, a webinar series, and support groups. The PFF Care Center Network connects medical centers throughout the United States that specialize in treating fibrotic lung diseases. The PFF Registry is a nationwide research program that encapsulates two databases: the PFF Patient Registry and PFF Community Registry. Combined, the two databases provide data on patients diagnosed with pulmonary fibrosis or interstitial lung disease, as well as their caregivers and biological family members. The PFF Ambassador program seeks to empower patients and caregivers to speak for the pulmonary fibrosis community and promote disease awareness. The organization also funds research through the PFF Scholars program to support early-career investigators with the goal of advancing research that could translate into successful therapies for pulmonary fibrosis. The PFF Summit is a biennial international health care conference on pulmonary fibrosis and interstitial lung disease with a goal of fostering a collaborative environment to improve education and awareness of pulmonary fibrosis and identify new approaches to treat and cure the disease.
For the year ended June 30, 2024, Pulmonary Fibrosis Foundation's program expenses were:
Support groups: $336,695
Program support: $800,895
PFF Summit: $1,213,499
PFF Registry: $1,527,128
Care Center Network: $646,622
Outreach and awareness: $843,940
Legislative advocacy: $211,715
Education: $856,356
Research grants: $902,682
Total Program Expenses: $7,339,532
Chief Executive
Scott Staszak, President and Chief Executive Officer
Compensation*
$341,001
Chair of the Board
Wayne T. Pan, MD,PhD
Chair's Profession / Business Affiliation
Chief Executive Officer, Semler Scientific
Board Size
13
Paid Staff Size
35
*2023 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Direct mail appeals, Radio
Fundraising costs were 32% of related contributions. (Related contributions, which totaled $6,605,471, are donations received as a result of fundraising activities.)
This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on Pulmonary Fibrosis Foundation's audited financial statements for the year ended June 30, 2024.
Source of Funds
| In-kind contributions | $418,781 |
| Miscellaneous income | $5,901 |
| Contributions | $3,234,872 |
| Sponsorships | $1,205,248 |
| Special events | $1,746,570 |
| Program service fees | $2,277,281 |
| Registration | $340,634 |
| Interest and dividends | $485,349 |
| Realized and unrealized investments, net | $427,476 |
| Total Income | $10,142,112 |
Programs: 70% Fundraising: 20% Administrative: 9%
| Total Income | $10,142,112 |
| Total expenses: | $10,422,647 |
| Program expenses | $7,339,532 |
| Fundraising expenses | $2,113,613 |
| Administrative expenses | $969,502 |
| Other expenses | $0 |
| Income in Excess of Expenses | $-280,535 |
| Beginning Net Assets | $11,735,249 |
| Other Changes In Net Assets | $0 |
| Ending Net Assets | $11,454,714 |
| Total Liabilities | $3,865,441 |
| Total Assets | $15,320,155 |
Note: According to PFF's audited financial statements for the year ended June 30, 2024, the organization received $418,781 in contributed goods and services including advertising ($412,122), and food and beverages ($6,659).
An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.
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Report completed by:
BBB Wise Giving Alliance