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CHARITY REVIEW
Issued: March 2024 Expires: March 2026

PSC Partners Seeking a Cure

Standards Not Met
Standards Not Met
6
(303) 771-5227
6900 East Belleview Avenue, Suite 202
Greenwood Village, CO, 80111
https://pscpartners.org/
📄 Full Report 🖨️ Print 📋 BBB Charity Standards

Standards For Charity Accountability

Governance

  1. Board Oversight
  2. Board Size
  3. Board Meetings
  4. Board Compensation
  5. Conflict of Interest

Measuring Effectiveness

  1. Effectiveness Policy
  2. Effectiveness Report

Finances

  1. Program Expenses
  2. Fundraising Expenses
  3. Accumulating Funds
  4. Audit Report
  5. Detailed Expense Breakdown
  6. Accurate Expense Reporting
  7. Budget Plan

Fundraising & Info

  1. Truthful Materials
  2. Annual Report
  3. Website Disclosures
  4. Donor Privacy
  5. Cause Marketing Disclosures
  6. Complaints

PSC Partners Seeking a Cure does not meet the following 1 Standards for Charity Accountability:

Standard 6 (Board Policy on Effectiveness)
Have a board policy of assessing, no less than every two years, the organization's performance and effectiveness and of determining future actions required to achieve its mission.

PSC Partners Seeking a Cure does not meet this Standard because:

  • The board of directors does not have a written policy stating that, at least every two years, an appraisal be done assessing the organization’s performance and effectiveness and determining future actions required to achieve its mission.

The BBB Wise Giving Alliance requested but did not receive complete information from the organization and is unable to verify the organization's compliance with the following Standard(s) for Charity Accountability: 7, 13

PSC Partners Seeking a Cure meets the remaining 17 Standards for Charity Accountability.

Stated Purpose:
"to drive research to identify treatments and a cure for primary sclerosing cholangitis (PSC), while providing education and support for those impacted by rare disease."

Year, State Incorporated:
2005, CO

PSC Partners Seeking a Cure (PSC Partners) offers support to patients, caregivers, families, and friends, as well as educates patients and the medical community about primary sclerosing cholangitis (PSC), a rare liver disease. PSC Partners raises funds to provide research grants to encourage the search for treatments and a cure. The organization supports patients and caregivers through a mentor program, educational webinars, and WALK83.01, a virtual walkathon event. PSC Partners drives research through their PSC Patient Registry, research grants, Patient Reported Outcome Measure, and the Worldwide Integration Of Natural History Databases and the International Collaborative Research Network, both focused on building an international database for the purpose of improving research, treatments, and patient voice.

For the year ended December 31, 2022, PSC Partners Seeking a Cure's program expenses were:

Program services $874,729
Total Program Expenses $874,729

Chief Executive
Ricky Safer, Chief Executive Officer

Chair of the Board
Joanne Grieme

Chair's Profession / Business Affiliation
Vice President, AirGroup America

Board Size
15

Paid Staff Size
8

*2021 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.

Note: The organization reports that Ms. Safer is a full-time volunteer. The Executive Director, Meegan Carey, was the highest compensated employee, receiving compensation totaling $125,489 in 2021.

Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Direct mail appeals, Radio, Print advertisements

Fundraising costs were 3% of related contributions. (Related contributions, which totaled $2,016,209, are donations received as a result of fundraising activities.)

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on PSC Partners Seeking a Cure's audited financial statements for the year ended December 31, 2022.

Source of Funds
Investment income, net $-57,840
Other income $750
Conference income $148,025
In-kind contributions $529,753
Contributions $1,486,456
Total Income $2,107,144

Programs: 79% Fundraising: 6% Administrative: 15%

Total Income $2,107,144
Total expenses: $1,109,278
  Program expenses $874,729
  Fundraising expenses $69,212
  Administrative expenses $165,337
  Other expenses $0
Income in Excess of Expenses $997,866
Beginning Net Assets $3,579,786
Other Changes In Net Assets $0
Ending Net Assets $4,577,652
Total Liabilities $18,020
Total Assets $4,595,672

Note: According to PSC Partners' 2021 audited financial statements, the organization received in-kind contributions totaling $910,837 in the form of promises to give ($720,725) and donated stocks and other investments ($190,112).

An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.

This report is not to be used for fundraising or promotional purposes.

RELATED CONTENT

Report completed by:
BBB Wise Giving Alliance