Lymphatic Education and Research Network
Meets Standards
Standards For Charity Accountability
Governance
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Board Oversight
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Board Size
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Board Meetings
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Board Compensation
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Conflict of Interest
Measuring Effectiveness
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Effectiveness Policy
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Effectiveness Report
Finances
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Program Expenses
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Fundraising Expenses
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Accumulating Funds
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Audit Report
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Detailed Expense Breakdown
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Accurate Expense Reporting
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Budget Plan
Fundraising & Info
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Truthful Materials
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Annual Report
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Website Disclosures
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Donor Privacy
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Cause Marketing Disclosures
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Complaints
Lymphatic Education and Research Network meets the 20 Standards for Charity Accountability.
Stated Purpose:
"to fight lymphatic diseases through education, research, and advocacy."
Year, State Incorporated:
1998, NY
Also Known As:
Lymphatic Research Foundation LERN
Lymphatic Education & Research Network (LE&RN) seeks to accelerate the prevention, treatment, and cure of lymphatic disease by bringing patients and medical professionals together to address the unmet needs surrounding lymphatic disorders, which include lymphedema and lipedema. The organization sponsors fellowship grants to scientists and clinicians to expand the pool of investigators in lymphatic research. In addition, LE&RN maintains a patient registry and biorepository which provides researchers with access to patient information and tissue samples to further research discoveries. The LE&RN Centers of Excellence also provide a network of multidisciplinary clinical care and service centers for individuals and families affected by lymphatic disease. Through LE&RN's education initiatives, the organization livestreams symposiums, publishes a peer-reviewed journal, and shares weekly newsletters.
For the year ended December 31, 2023, Lymphatic Education and Research Network's program expenses were:
Program services: $1,453,045
Total Program Expenses: $1,453,045
Chief Executive
William Repicci, President and Chief Executive Officer
Compensation*
$321,599
Chair of the Board
Dave McDowell
Chair's Profession / Business Affiliation
Investor, Axis Ventures
Board Size
6
Paid Staff Size
6
*2023 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Direct mail appeals, Radio
Fundraising costs were 10% of related contributions. (Related contributions, which totaled $1,427,587, are donations received as a result of fundraising activities.)
This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on Lymphatic Education and Research Network's audited financial statements for the year ended December 31, 2023.
Source of Funds
| Contributions | $868,557 |
| New York State DOH grant | $90,000 |
| Federal funding | $432,491 |
| Special events, net | $36,539 |
| Interest and dividends | $48,778 |
| Unrealized gains on investments | $112,431 |
| Total Income | $1,588,796 |
Programs: 84% Fundraising: 8% Administrative: 8%
| Total Income | $1,588,796 |
| Total expenses: | $1,736,198 |
| Program expenses | $1,453,045 |
| Fundraising expenses | $147,508 |
| Administrative expenses | $135,645 |
| Other expenses | $0 |
| Income in Excess of Expenses | $-147,402 |
| Beginning Net Assets | $3,618,175 |
| Other Changes In Net Assets | $0 |
| Ending Net Assets | $3,470,773 |
| Total Liabilities | $357,401 |
| Total Assets | $3,828,174 |
An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.
This report is not to be used for fundraising or promotional purposes.
RELATED CONTENT
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Meets Standards
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Standards Not Met
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Did Not Disclose
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Review in Progress
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Unable to Verify
Report completed by:
BBB Wise Giving Alliance