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CHARITY REVIEW
Issued: July 2024 Expires: July 2026

International OCD Foundation

Standards Not Met
Standards Not Met
6 7 14 16 19
(617) 973-5801
Post Office Box 961029
Boston, MA, 02196
https://iocdf.org
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Standards For Charity Accountability

Governance

  1. Board Oversight
  2. Board Size
  3. Board Meetings
  4. Board Compensation
  5. Conflict of Interest

Measuring Effectiveness

  1. Effectiveness Policy
  2. Effectiveness Report

Finances

  1. Program Expenses
  2. Fundraising Expenses
  3. Accumulating Funds
  4. Audit Report
  5. Detailed Expense Breakdown
  6. Accurate Expense Reporting
  7. Budget Plan

Fundraising & Info

  1. Truthful Materials
  2. Annual Report
  3. Website Disclosures
  4. Donor Privacy
  5. Cause Marketing Disclosures
  6. Complaints

International OCD Foundation does not meet the following 5 Standards for Charity Accountability:

Standard 6 (Board Policy on Effectiveness)
Have a board policy of assessing, no less than every two years, the organization's performance and effectiveness and of determining future actions required to achieve its mission.

IOCDF does not meet this Standard because:

  • The board of directors does not have a written policy stating that, at least every two years, an appraisal be done assessing the organization’s performance and effectiveness and determining future actions required to achieve its mission.

Standard 7 (Board Approval of Written Report on Effectiveness)
Submit to the organization's governing body, for its approval, a written report that outlines the results of the aforementioned performance and effectiveness assessment and recommendations for future actions.

IOCDF does not meet this Standard because:

  • The organization has not completed an effectiveness assessment in the last two years.

Standard 14 (Budget)
Have a board-approved annual budget for its current fiscal year, outlining projected expenses for major program activities, fund raising, and administration.

IOCDF does not meet this Standard because, when the organization provided 2024 budget information, it indicated that the budget:

  • Did not identify total projected program service expenses.
  • Did not identify total projected fundraising expenses.
  • Did not identify total projected administrative expenses.

Standard 16 (Annual Report)
Have an annual report available to all, on request, that includes: (a) the organization's mission statement, (b) a summary of the past year's program service accomplishments, (c) a roster of the officers and members of the board of directors, (d) financial information that includes (i) total income in the past fiscal year, (ii) expenses in the same program, fund raising and administrative categories as in the financial statements, and (iii) ending net assets.

IOCDF does not meet this Standard because the 2022 annual report did not include:

  • 2022 financial information that matched the organization's audited financial statements.
  • Ending net assets.

Standard 19 (Cause Related Marketing)
Clearly disclose how the charity benefits from the sale of products or services (i.e., cause-related marketing) that state or imply that a charity will benefit from a consumer sale or transaction. Such promotions should disclose, at the point of solicitation: (a) the actual or anticipated portion of the purchase price that will benefit the charity (e.g., 5 cents will be contributed to abc charity for every xyz company product sold), (b) the duration of the campaign (e.g., the month of October), (c) any maximum or guaranteed minimum contribution amount (e.g., up to a maximum of $200,000).

IOCDF does not meet this Standard because, in the past year, the organization participated in a promotion for the sale of consumer goods which indicated that the organization would benefit from these purchases. The promotion, however, did not specify:

  • The actual or anticipated amount of the purchase price that would benefit the organization.

The BBB Wise Giving Alliance requested but did not receive complete information from the organization and is unable to verify the organization's compliance with the following Standard(s) for Charity Accountability: 3, 15

International OCD Foundation meets the remaining 13 Standards for Charity Accountability.

Stated Purpose:
"to ensure that no one affected by OCD and related disorders suffers alone."

Year, State Incorporated:
1987, MA

The International OCD Foundation (IOCDF) provides information about obsessive compulsive disorder (OCD) and related disorders, and serves as a nexus of a broad international community of individuals with OCD, their family members and loved ones, and mental health professionals and researchers. The Foundation aims to improve outcomes for individuals with OCD and related disorders by: providing resources and support for those affected by OCD, linking individuals to treatment and support groups, and offering a suite of educational websites; promoting awareness about OCD and related disorders to the OCD community and the general public through awareness-raising and stigma-reducing events and campaigns; increasing access to treatment through education and training for mental health professionals in evidence-based treatments, providing a forum for professional collaboration and networking; and advancing research investigating the causes of and treatments for OCD through grants to researchers. The organization has 31 regional affiliates nationwide that carry out the mission of the organization at the local level, and IOCDF advocates with lived experience that volunteer to lead the community, raise awareness, and educate the public. IOCDF's Scientific and Clinical Advisory Board is composed of clinicians and researchers in the United States who treat and research OCD and related disorders to guide programming and research.

For the year ended December 31, 2022, International OCD Foundation's program expenses were:

Research and education $3,421,991
Total Program Expenses $3,421,991

Chief Executive
Rebecca Deusser, Executive Director

Chair of the Board
Susan Boaz

Chair's Profession / Business Affiliation
President and Chief Executive Officer, The Galway Company and Flagology.com

Board Size
13

Paid Staff Size
21

*2022 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.

Note: Compensation information for Rebecca Deusser is not yet available. The highest compensated employee in 2022 was the former Executive Director, Jeffrey Szymanski, who received $184,195.

Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Direct mail appeals, Radio, Print advertisements

Fundraising costs were 9% of related contributions. (Related contributions, which totaled $3,027,074, are donations received as a result of fundraising activities.)

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on International OCD Foundation's audited financial statements for the year ended December 31, 2022.

Source of Funds
Realized and unrealized loss on investments $-330,483
In-kind contributions $13,402
Interest and dividend income $23,434
Miscellaneous income $24,201
Membership dues $410,261
Behavior Therapy Institute fees $421,053
Conferences $892,099
Contributions and grants $3,013,672
Total Income $4,467,639

Programs: 85% Fundraising: 6% Administrative: 9%

Total Income $4,467,639
Total expenses: $4,026,007
  Program expenses $3,421,991
  Fundraising expenses $259,818
  Administrative expenses $344,198
  Other expenses $0
Income in Excess of Expenses $441,632
Beginning Net Assets $5,015,325
Other Changes In Net Assets $-54,117
Ending Net Assets $5,402,840
Total Liabilities $2,386,622
Total Assets $7,789,462

Note 1: According to IOCDF's 2022 audited financial statements, the organization received in-kind contributions totaling $13,402 in the form of honoraria.

Note 2: In the financial section above, "other changes in net assets" refers to a change in value of charitable remainder trust.

An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.

This report is not to be used for fundraising or promotional purposes.

RELATED CONTENT

Report completed by:
BBB Wise Giving Alliance