Foundation for Ichthyosis and Related Skin Types does not meet the following 2 Standards for Charity Accountability:
Standard 16 (Annual Report)
Have an annual report available to all, on request, that includes: (a) the organization's mission statement, (b) a summary of the past year's program service accomplishments, (c) a roster of the officers and members of the board of directors, (d) financial information that includes (i) total income in the past fiscal year, (ii) expenses in the same program, fund raising and administrative categories as in the financial statements, and (iii) ending net assets.
FIRST does not meet this Standard because the organization's 2019 annual report does not include:
- A roster of the board of directors.
- 2019 financial information.
Standard 18 (Privacy for Written Appeals & Internet Privacy)
Address privacy concerns of donors by (a) providing in written appeals, at least annually, a means (e.g., such as a check off box) for both new and continuing donors to inform the charity if they do not want their name and address shared outside the organization, (b) providing a clear, prominent and easily accessible privacy policy on any of its websites that tells visitors (i) what information, if any, is being collected about them by the charity and how this information will be used, (ii) how to contact the charity to review personal information collected and request corrections, (iii) how to inform the charity (e.g., a check off box) that the visitor does not wish his/her personal information to be shared outside the organization, and (iv) what security measures the charity has in place to protect personal information.
FIRST does not meet this Standard because the privacy policy on the organization's website, https://firstskinfoundation.org, does not indicate:
- What security measures are in place to protect personal information that is collected.
Foundation for Ichthyosis and Related Skin Types meets the remaining 18 Standards for Charity Accountability.
Foundation for Ichthyosis & Related Skin Types (FIRST) aims to provide support for families and individuals who are affected by ichthyosis and related skin types. In 2017, the organization reported that it connected over 450 individuals through face-to-face meetings, and grew its online support groups to include over 4,700 users on social media. FIRST publishes a quarterly newsletter, delivers monthly e-news to members, and maintains its website and social media channels.
For the year ended September 30, 2019, Foundation for Ichthyosis and Related Skin Types's program expenses were:
Program services |
$400,512 |
Total Program Expenses: |
$400,512 |
*2019 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Invitations to fund raising events
Fundraising costs were 9% of related contributions. (Related contributions, which totaled $527,211, are donations received as a result of fundraising activities.)
This organization is tax-exempt under section 501(c) (3) of the Internal Revenue Code.It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on Foundation for Ichthyosis and Related Skin Types's audited financial statements for the year ended September 30, 2019.
Source of Funds |
Contributions |
$527,211 |
Investment income |
$83,022 |
Total Income |
$610,233 |
- Programs: 77%
- Administrative: 15%
- Fundraising: 8%
Total Income |
$610,233 |
Program expenses |
$400,512 |
Fundraising expenses |
$45,268 |
Administrative expenses |
$77,279 |
Other expenses |
$0 |
Total expenses: |
$523,059 |
Income in Excess of Expenses |
$87,174 |
Beginning Net Assets |
$1,986,762 |
Other Changes In Net Assets |
$0 |
Ending Net Assets |
$2,073,936 |
Total Liabilities |
$95,705 |
Total Assets |
$2,169,641 |