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CHARITY REVIEW
Issued: September 2025 Expires: September 2027

Children's Tumor Foundation

Standards Not Met
Standards Not Met
6 7
(212) 344-6633
697 Third Avenue, Suite 418
New York, NY, 10017
https://www.ctf.org
📄 Full Report 🖨️ Print 📋 BBB Charity Standards

Standards For Charity Accountability

Governance

  1. Board Oversight
  2. Board Size
  3. Board Meetings
  4. Board Compensation
  5. Conflict of Interest

Measuring Effectiveness

  1. Effectiveness Policy
  2. Effectiveness Report

Finances

  1. Program Expenses
  2. Fundraising Expenses
  3. Accumulating Funds
  4. Audit Report
  5. Detailed Expense Breakdown
  6. Accurate Expense Reporting
  7. Budget Plan

Fundraising & Info

  1. Truthful Materials
  2. Annual Report
  3. Website Disclosures
  4. Donor Privacy
  5. Cause Marketing Disclosures
  6. Complaints

Children's Tumor Foundation does not meet the following 2 Standards for Charity Accountability:

Standard 6 (Board Policy on Effectiveness)
Have a board policy of assessing, no less than every two years, the organization's performance and effectiveness and of determining future actions required to achieve its mission.

CTF does not meet this Standard because:

  • The board of directors does not have a written policy stating that, at least every two years, an appraisal be done assessing the organization’s performance and effectiveness and determining future actions required to achieve its mission.

Standard 7 (Board Approval of Written Report on Effectiveness)
Submit to the organization's governing body, for its approval, a written report that outlines the results of the aforementioned performance and effectiveness assessment and recommendations for future actions.

CTF does not meet this Standard because:

  • The organizaiton has not completed an effectiveness assessment in the last two years.

Children's Tumor Foundation meets the remaining 18 Standards for Charity Accountability.

Stated Purpose:
"to drive research, expand knowledge, and advance care for the neurofibromatosis community."

Year, State Incorporated:
1978, NY

By connecting patients, doctors, scientists, and pharma, Children's Tumor Foundation (CTF) reports that it drives treatments, advances care, and delivers results for millions affected by neurofibromatosis or schwannomatosis, collectively referred to as NF. The organization reports that its patient-first, collaborative approach accelerates drug development and brings life-changing therapies to patients faster.

For the year ended December 31, 2023, Children's Tumor Foundation's program expenses were:

Research and medical: $10,429,683

Public education and patient support: $5,650,326

Total Program Expenses: $16,080,009

Chief Executive
Annette Bakker, Chief Executive Officer

Compensation*
$472,045

Chair of the Board
Gabriel Groisman

Chair's Profession / Business Affiliation
Attorney, LSN Partners, LLC

Board Size
18

Paid Staff Size
47

*2023 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.

Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Direct mail appeals, Radio

Fundraising costs were 8% of related contributions. (Related contributions, which totaled $15,955,747, are donations received as a result of fundraising activities.)

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on Children's Tumor Foundation's audited financial statements for the year ended December 31, 2023.

Source of Funds
Investment activity $1,438,619
Individual contributions $7,375,454
Corporations and foundations $4,161,398
Bequests $544,494
In-kind contributions $488,964
Other $158,890
Government grants $178,253
Special events, net $3,048,294
Total Income $17,394,366

Programs: 84% Fundraising: 7% Administrative: 10%

Total Income $17,394,366
Total expenses: $19,226,531
  Program expenses $16,080,009
  Fundraising expenses $1,261,974
  Administrative expenses $1,884,548
  Other expenses $0
Income in Excess of Expenses $-1,832,165
Beginning Net Assets $27,681,382
Other Changes In Net Assets $1,161
Ending Net Assets $25,850,378
Total Liabilities $4,344,341
Total Assets $30,194,719

Note 1: For the year ended December 31, 2023, Children's Tumor Foundation reported in-kind donations totaling $488,964 including advertising ($255,503), legal and professional fees ($122,351), raffle and auction items ($74,134), other ($35,796), and event food ($1,180).

Note 2: In the financial summary above, "other changes in net assets" refers to gain on foreign currency translation.

An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.

This report is not to be used for fundraising or promotional purposes.

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Report completed by:
BBB Wise Giving Alliance