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CHARITY REVIEW
Issued: January 2023 Expires: November 2025

CURE Epilepsy

Accredited Charity
Accredited Charity

Meets Standards

Accreditation seal
420 North Wabash Avenue, Suite 650
Chicago, IL, 60610

Standards For Charity Accountability

Governance

  1. Board Oversight
  2. Board Size
  3. Board Meetings
  4. Board Compensation
  5. Conflict of Interest

Measuring Effectiveness

  1. Effectiveness Policy
  2. Effectiveness Report

Finances

  1. Program Expenses
  2. Fundraising Expenses
  3. Accumulating Funds
  4. Audit Report
  5. Detailed Expense Breakdown
  6. Accurate Expense Reporting
  7. Budget Plan

Fundraising & Info

  1. Truthful Materials
  2. Annual Report
  3. Website Disclosures
  4. Donor Privacy
  5. Cause Marketing Disclosures
  6. Complaints

CURE Epilepsy meets the 20 Standards for Charity Accountability.

Stated Purpose:
"to find a cure for epilepsy, by promoting and funding patient-focused research."

Year, State Incorporated:
1998, IL

Also Known As:
CURE: Citizens United for Research in Epilepsy

CURE Epilepsy is committed to funding patient-focused research to find a cure for epilepsy. The organization funds novel research projects that will hopefully accelerate research for a cure. Through an ambitious and innovative research program, the organization reports that it funds cutting-edge projects in 15 countries around the world.

For the year ended December 31, 2021, CURE Epilepsy's program expenses were:

Research: $4,070,075

Awareness: $962,652

Scholarship program: $50,000

Total Program Expenses: $5,082,727

Chief Executive
Beth Lewin Dean, Chief Executive Officer

Compensation*
$318,656

Chair of the Board
Kelly Cervantes

Chair's Profession / Business Affiliation

Board Size
13

Paid Staff Size
16

*2021 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.

Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Direct mail appeals, Radio, Telemarketing, Print advertisements

Fundraising costs were 11% of related contributions. (Related contributions, which totaled $4,394,000, are donations received as a result of fundraising activities.)

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on CURE Epilepsy's audited financial statements for the year ended December 31, 2021.

Source of Funds
Contributions $2,430,452
Special events, net $1,964,077
Federal grant revenue $1,057,228
Grants returned $262,718
Interest and dividends, net $107,861
Gain on forgiveness of debt $526,872
Total Income $6,349,208

Programs: 86% Fundraising: 8% Administrative: 5%

Total Income $6,349,208
Total expenses: $5,884,336
  Program expenses $5,082,727
  Fundraising expenses $495,928
  Administrative expenses $305,681
  Other expenses $0
Income in Excess of Expenses $464,872
Beginning Net Assets $6,576,284
Other Changes In Net Assets $330,583
Ending Net Assets $7,371,739
Total Liabilities $3,124,713
Total Assets $10,496,452

Note 1: According to the organziation's audited financial statements for the year ended December 31, 2021, CURE received in-kind donations of $58,956 in the form of legal services.

Note 2: In the above financial section, "other changes in net assets" represents a change in fair value of investments.

An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.

This report is not to be used for fundraising or promotional purposes.

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Report completed by:
BBB Wise Giving Alliance