Childhood Leukemia Foundation
Standards For Charity Accountability
Governance
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Board Oversight
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Board Size
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Board Meetings
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Board Compensation
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Conflict of Interest
Measuring Effectiveness
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Effectiveness Policy
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Effectiveness Report
Finances
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Program Expenses
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Fundraising Expenses
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Accumulating Funds
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Audit Report
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Detailed Expense Breakdown
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Accurate Expense Reporting
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Budget Plan
Fundraising & Info
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Truthful Materials
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Annual Report
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Website Disclosures
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Donor Privacy
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Cause Marketing Disclosures
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Complaints
Childhood Leukemia Foundation does not meet the following 7 Standards for Charity Accountability:
Standard 2 (Number of Board Members)
Soliciting organizations shall have a board of directors with a minimum of five voting members.
CLF does not meet this Standard because:
- The organization has three voting members of the board.
Standard 6 (Board Policy on Effectiveness)
Have a board policy of assessing, no less than every two years, the organization's performance and effectiveness and of determining future actions required to achieve its mission.
CLF does not meet this Standard because:
- The board of directors does not have a written policy stating that, at least every two years, an appraisal be done assessing the organization’s performance and effectiveness and determining future actions required to achieve its mission.
Standard 7 (Board Approval of Written Report on Effectiveness)
Submit to the organization's governing body, for its approval, a written report that outlines the results of the aforementioned performance and effectiveness assessment and recommendations for future actions.
CLF does not meet this Standard because:
- The organization has not completed an effectiveness assessment in the last two years.
Standard 8 (Program Service Expense Ratio)
Spend at least 65% of its total expenses on program activities.
CLF does not meet this Standard because:
- According to its audited financial statements for the year ended December 31, 2022, the organization spent $640,040 or 22% of its total expenses on programs.
Standard 9 (Fund Raising Expense Ratio)
Spending should be no more than 35% of related contributions on fund raising. Related contributions include donations, legacies, and other gifts received as a result of fund raising efforts.
CLF does not meet this Standard because:
- According to its audited financial statements for the year ended Deember 31, 2022, the organization's fundraising costs were 75% ($2,154,905) of related contributions, which totaled $2,865,729.
Standard 16 (Annual Report)
Have an annual report available to all, on request, that includes: (a) the organization's mission statement, (b) a summary of the past year's program service accomplishments, (c) a roster of the officers and members of the board of directors, (d) financial information that includes (i) total income in the past fiscal year, (ii) expenses in the same program, fund raising and administrative categories as in the financial statements, and (iii) ending net assets.
CLF does not meet this Standard because the 2023 annual report did not include:
- Total program expenses.
- Total fundraising expenses.
- Total admnistrative expenses.
Standard 18 (Privacy for Written Appeals & Internet Privacy)
Address privacy concerns of donors by (a) providing in written appeals, at least annually, a means (e.g., such as a check off box) for both new and continuing donors to inform the charity if they do not want their name and address shared outside the organization, (b) providing a clear, prominent and easily accessible privacy policy on any of its websites that tells visitors (i) what information, if any, is being collected about them by the charity and how this information will be used, (ii) how to contact the charity to review personal information collected and request corrections, (iii) how to inform the charity (e.g., a check off box) that the visitor does not wish his/her personal information to be shared outside the organization, and (iv) what security measures the charity has in place to protect personal information.
CLF does not meet this Standard because:
- The organization's website, https://www.clf4kids.org, does not provide access to a privacy policy.
The BBB Wise Giving Alliance requested but did not receive complete information from the organization and is unable to verify the organization's compliance with the following Standard(s) for Charity Accountability: 15
Childhood Leukemia Foundation meets the remaining 12 Standards for Charity Accountability.
Stated Purpose:
"to alleviate the pain and suffering of children, ages from
birth to twenty-one, afflicted with cancer."
Year, State Incorporated:
1992, NJ
Childhood Leukemia Foundation (CLF) programs are designed to address the emotional and educational needs of children with cancer. The organization promotes education and advocacy, which are available to any pediatric cancer patient in the United States under the age of twenty-one.
For the year ended December 31, 2022, Childhood Leukemia Foundation's program expenses were:
Hospital visits and special requests: $187,802
Other programs: $11,560
Hope Binder: $46,789
Keeping Kids Connected: $268,195
Wish Baskets: $82,068
Hugs-U-Wear: $43,627
Total Program Expenses: $640,040
Chief Executive
Barbara Haramis, Executive Director
Compensation*
$181,363
Chair of the Board
Barbara Reid-Haramis
Chair's Profession / Business Affiliation
Executive Director, Childhood Leukemia Foundation
Board Size
4
Paid Staff Size
3
*2022 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
Method(s) Used:
Direct mail appeals, Grant proposals, Radio, Telemarketing
Fundraising costs were 75% of related contributions. (Related contributions, which totaled $2,865,729, are donations received as a result of fundraising activities.)
This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on Childhood Leukemia Foundation's audited financial statements for the year ended December 31, 2022.
Source of Funds
| Investment and other income | $-619 |
| Special events, net | $69,631 |
| Individuals and corporate contributions | $2,641,318 |
| Foundation grants | $154,780 |
| Total Income | $2,865,110 |
Programs: 22% Fundraising: 75% Administrative: 2%
| Total Income | $2,865,110 |
| Total expenses: | $2,865,865 |
| Program expenses | $640,040 |
| Fundraising expenses | $2,154,905 |
| Administrative expenses | $70,920 |
| Other expenses | $0 |
| Income in Excess of Expenses | $-755 |
| Beginning Net Assets | $1,090,191 |
| Other Changes In Net Assets | $0 |
| Ending Net Assets | $1,089,436 |
| Total Liabilities | $108,526 |
| Total Assets | $1,197,962 |
An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.
This report is not to be used for fundraising or promotional purposes.
RELATED CONTENT
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Meets Standards
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Standards Not Met
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Did Not Disclose
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Review in Progress
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Unable to Verify
Report completed by:
BBB Wise Giving Alliance