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CHARITY REVIEW
Issued: August 2025 Expires: August 2027

The LAM Foundation

Standards Not Met
Standards Not Met
6 7 16
(877) 287-3526
4520 Cooper Rd Ste 300
Montgomery, OH, 45242-5687
https://www.thelamfoundation.org
📄 Full Report 🖨️ Print 📋 BBB Charity Standards

Standards For Charity Accountability

Governance

  1. Board Oversight
  2. Board Size
  3. Board Meetings
  4. Board Compensation
  5. Conflict of Interest

Measuring Effectiveness

  1. Effectiveness Policy
  2. Effectiveness Report

Finances

  1. Program Expenses
  2. Fundraising Expenses
  3. Accumulating Funds
  4. Audit Report
  5. Detailed Expense Breakdown
  6. Accurate Expense Reporting
  7. Budget Plan

Fundraising & Info

  1. Truthful Materials
  2. Annual Report
  3. Website Disclosures
  4. Donor Privacy
  5. Cause Marketing Disclosures
  6. Complaints

The LAM Foundation does not meet the following 3 Standards for Charity Accountability:

Standard 6 (Board Policy on Effectiveness)
Have a board policy of assessing, no less than every two years, the organization's performance and effectiveness and of determining future actions required to achieve its mission.

The LAM Foundation does not meet this standard because:

Organization does not currently have a strategic plan in place but is working on one for 2026-2028.

Standard 7 (Board Approval of Written Report on Effectiveness)
Submit to the organization's governing body, for its approval, a written report that outlines the results of the aforementioned performance and effectiveness assessment and recommendations for future actions.

The LAM Foundation does not meet this standard because:

Standard 16 (Annual Report)
Have an annual report available to all, on request, that includes: (a) the organization's mission statement, (b) a summary of the past year's program service accomplishments, (c) a roster of the officers and members of the board of directors, (d) financial information that includes (i) total income in the past fiscal year, (ii) expenses in the same program, fund raising and administrative categories as in the financial statements, and (iii) ending net assets.

The LAM Foundation does not meet this standard because:

Organization's 2024 annual report is missing a board roster with officers indicated as well as the financial figures required by this Standard.

The LAM Foundation meets the remaining 17 Standards for Charity Accountability.

Stated Purpose:
The LAM Foundation urgently seeks new treatments and a cure for LAM.

Year, State Incorporated:
1995, OH

We provide advocacy and educational support to our patients and their care partners. We also fund promising research to help find a cure for LAM. In addition, we have a network of clinicians who are knowledgeable about LAM and provide care and treatment of women with LAM.

For the year ended December 31, 2023, The LAM Foundation's program expenses were:

Research $863,465
Patient services $356,910
Clinical $118,220
Total Program Expenses $1,338,595

Chief Executive
Patti Toumey, Executive Director

Chair of the Board
Mr. Greg Downey MD, Board Chairperson

Chair's Profession / Business Affiliation

Board Size
11

Paid Staff Size
7

Method(s) Used:
Direct mail appeals, Invitations to fund raising events, Appeals via Social Media (Facebook, etc.)

% of Related Contributions on Fundraising: 15.43%

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on The LAM Foundation's audited financial statements for the year ended December 31, 2023.

Source of Funds
Honor, memorial, bequests, and general donations $713,084
Contributions from special events, net $594,891
Interest income $85,361
Corporate and foundation gifts $46,551
Contributed services $31,500
Conference registrations and sponsorships $10,000
Miscellaneous income $5,770
Total Income $1,487,157

Programs: 73% Fundraising: 12% Administrative: 15%

Total Income $1,487,157
Total expenses: $1,834,572
  Program expenses $1,338,595
  Fundraising expenses $213,868
  Administrative expenses $282,109
  Other expenses $0
Income in Excess of Expenses $-347,415
Beginning Net Assets $2,596,698
Other Changes In Net Assets $0
Ending Net Assets $2,249,283
Total Liabilities $347,702
Total Assets $2,596,985

An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.

This report is not to be used for fundraising or promotional purposes.

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Report completed by:
BBB Cincinnati