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CHARITY REVIEW
Issued: August 2024 Expires: August 2026

Propionic Acidemia Foundation

Standards Not Met
Standards Not Met
1
(877) 720-2192
PO Box 151
Deerfield, IL, 60015-0151
https://www.pafoundation.com/wordpress/
📄 Full Report 🖨️ Print 📋 BBB Charity Standards

Standards For Charity Accountability

Governance

  1. Board Oversight
  2. Board Size
  3. Board Meetings
  4. Board Compensation
  5. Conflict of Interest

Measuring Effectiveness

  1. Effectiveness Policy
  2. Effectiveness Report

Finances

  1. Program Expenses
  2. Fundraising Expenses
  3. Accumulating Funds
  4. Audit Report
  5. Detailed Expense Breakdown
  6. Accurate Expense Reporting
  7. Budget Plan

Fundraising & Info

  1. Truthful Materials
  2. Annual Report
  3. Website Disclosures
  4. Donor Privacy
  5. Cause Marketing Disclosures
  6. Complaints

Propionic Acidemia Foundation does not meet the following 1 Standards for Charity Accountability:

Standard 1 (Oversight of Operations and Staff)
Organizations shall have a board of directors that provides adequate oversight of the charity's operations and its staff. Indication of adequate oversight includes, but is not limited to, regularly scheduled appraisals of the CEO's performance, evidence of disbursement controls such as board approval of the budget, fund raising practices, establishment of a conflict of interest policy, and establishment of accounting procedures sufficient to safeguard charity finances.

Propionic Acidemia Foundation does not meet this standard because:

The same individual serves as both the CEO/Executive Director and Board President.

Propionic Acidemia Foundation meets the remaining 19 Standards for Charity Accountability.

Stated Purpose:
The Propionic Acidemia Foundation is dedicated to finding improved treatments and a cure for Propionic Acidemia by funding research and providing information and support to families and medical professionals.

Year, State Incorporated:
2003, IL

Providing Information and support
Funds research grants on propionic acidemia
Attend and Exhibit at National Conferences
Website – links to Parent Guides, nutritional information, research publications, resources, etc…
Newsletter sent out twice a year
PA International Patient Registry
PA Education Conference offers opportunity for families, researchers and medical providers to learn and interact
PA Family Day give families time to learn from other families that are affected by PA in a warm, casual environment.
Facebook Group  gives families a chance to ask questions, give updates, and get support.
Care Notebook for families that can be downloaded
Toll free phone number (US)

For the year ended July 31, 2023, Propionic Acidemia Foundation's program expenses were:

Research grants $152,752
Outreach, education, and awareness $30,640
Total Program Expenses $183,392

Chief Executive
Jill Chertow, President

Chair's Profession / Business Affiliation
Not disclosed

Board Size
Not disclosed

Paid Staff Size
1

% of Related Contributions on Fundraising: 2.49%

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on Propionic Acidemia Foundation's IRS Form 990 for the year ended July 31, 2023.

Source of Funds
Contributions and grants $165,533
Investment income $6,861
Total Income $172,394

Programs: 97% Fundraising: 2% Administrative: 1%

Total Income $172,394
Total expenses: $190,005
  Program expenses $183,392
  Fundraising expenses $4,117
  Administrative expenses $2,496
  Other expenses $0
Income in Excess of Expenses $-17,611
Beginning Net Assets $455,691
Other Changes In Net Assets $0
Ending Net Assets $438,080
Total Liabilities $0
Total Assets $438,080

An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.

This report is not to be used for fundraising or promotional purposes.

RELATED CONTENT

Report completed by:
BBB of Chicago & Northern Illinois