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CHARITY REVIEW
Issued: January 2026 Expires: January 2028

PKD Foundation

Accredited Charity
Accredited Charity

Meets Standards
(800) 753-2873
1001 East 101st Terrace, Suite 220
Kansas City, MO, 64131
https://pkdcure.org
📄 Full Report 🖨️ Print 📋 BBB Charity Standards

Standards For Charity Accountability

Governance

  1. Board Oversight
  2. Board Size
  3. Board Meetings
  4. Board Compensation
  5. Conflict of Interest

Measuring Effectiveness

  1. Effectiveness Policy
  2. Effectiveness Report

Finances

  1. Program Expenses
  2. Fundraising Expenses
  3. Accumulating Funds
  4. Audit Report
  5. Detailed Expense Breakdown
  6. Accurate Expense Reporting
  7. Budget Plan

Fundraising & Info

  1. Truthful Materials
  2. Annual Report
  3. Website Disclosures
  4. Donor Privacy
  5. Cause Marketing Disclosures
  6. Complaints

PKD Foundation meets the 20 Standards for Charity Accountability.

Stated Purpose:
"to give hope; to fund research, advocate for patients, and build a community for all impacted by PKD."

Year, State Incorporated:
1982, MO

PKD Foundation works to find treatments and a cure for polycystic kidney disease (PKD). The organization funds research, promotes education, and advocates locally and nationally to increase awareness of the disease. PKD reports that they serve its organization's multiple partner clinics across the United States to provide direct health services to patients with PKD. The organization also supports over 50 volunteer-led chapters that connect patients and their families with others to offer emotional support, share resources, and drive research on PKD through local community groups, online forums like PKD Thrive, and events like the Walk for PKD. The foundation also provides educational resources for patients and caregivers, as well as training and grant research opportunities for clinicians and researchers. The organization funds basic and clinical research, nephrology fellowships, and scientific meetings to discover and deliver treatments and a cure for PKD. As part of the organization’s research efforts, PKD Foundation also has a patient registry and network for people with autosomal dominant polycystic kidney disease (ADPKD). As reported by the organization, their ADPKD registry collects information about ADPKD diagnosis, symptoms, and disease management, with the goal to improve patient outcomes, better understand ADPKD patients’ experiences, and identify unmet medical needs.

For the year ended June 30, 2024, PKD Foundation's program expenses were:

Research $4,790,352
Awareness and advocacy $1,897,372
Education and support $1,303,167
Total Program Expenses $7,990,891

Chief Executive
Susan Bushnell, President and Chief Executive Officer

Compensation*
$355,035

Chair of the Board
Christopher Wess

Chair's Profession / Business Affiliation
Finance Lead in Manufacturing and Supply Chain, Organon & Co.

Board Size
16

Paid Staff Size
35

*2023 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.

Method(s) Used:
Direct mail appeals, Invitations to fund raising events, Print advertisements (newspapers, magazines, etc.), Grant proposals, Internet, Planned giving arrangements, Workplace Giving

Fundraising costs were 12% of related contributions. (Related contributions, which totaled $8,721,019, are donations received as a result of fundraising activities.)

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on PKD Foundation's audited financial statements for the year ended June 30, 2024.

Source of Funds
Contributions $8,197,200
Investment return, net $2,658,685
In-kind contributions $523,819
Total Income $11,364,016

Programs: 79% Fundraising: 10% Administrative: 11%

Total Income $11,364,016
Total expenses: $10,106,648
  Program expenses $7,990,891
  Fundraising expenses $1,003,292
  Administrative expenses $1,112,465
  Other expenses $0
Income in Excess of Expenses $1,257,368
Beginning Net Assets $32,440,941
Other Changes In Net Assets $0
Ending Net Assets $33,698,309
Total Liabilities $940,318
Total Assets $34,638,627

Note: According to PKD Foundation's audited financial statements for the year ended June 30, 2024, the organization received in-kind contributions totaling $523,819 in the form of services ($492,247) and special event goods ($31,572).

An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.

This report is not to be used for fundraising or promotional purposes.

RELATED CONTENT

Report completed by:
BBB Wise Giving Alliance