Give.org logo
Support Give.org
Support Give.org
CHARITY REVIEW
Issued: September 2025 Expires: September 2027

Neuroendocrine Tumor Research Foundation

Standards Not Met
Standards Not Met
6 14
(617) 946-1780
100 Hancock Street, 3rd Floor
Quincy, MA, 02171
https://netrf.org
📄 Full Report 🖨️ Print 📋 BBB Charity Standards

Standards For Charity Accountability

Governance

  1. Board Oversight
  2. Board Size
  3. Board Meetings
  4. Board Compensation
  5. Conflict of Interest

Measuring Effectiveness

  1. Effectiveness Policy
  2. Effectiveness Report

Finances

  1. Program Expenses
  2. Fundraising Expenses
  3. Accumulating Funds
  4. Audit Report
  5. Detailed Expense Breakdown
  6. Accurate Expense Reporting
  7. Budget Plan

Fundraising & Info

  1. Truthful Materials
  2. Annual Report
  3. Website Disclosures
  4. Donor Privacy
  5. Cause Marketing Disclosures
  6. Complaints

Neuroendocrine Tumor Research Foundation does not meet the following 2 Standards for Charity Accountability:

Standard 6 (Board Policy on Effectiveness)
Have a board policy of assessing, no less than every two years, the organization's performance and effectiveness and of determining future actions required to achieve its mission.

NTRF does not meet this Standard because:

  • The organization's effectiveness assessment policy does not specify that this assessment will take place at least once every two years.

Standard 14 (Budget)
Have a board-approved annual budget for its current fiscal year, outlining projected expenses for major program activities, fund raising, and administration.

NTRF does not meet this Standard because, when the organization provided 2025 budget information, it indicated that the budget:

  • Did not identify total projected fundraising expenses.

The BBB Wise Giving Alliance requested but did not receive complete information from the organization and is unable to verify the organization's compliance with the following Standard(s) for Charity Accountability: 7

Neuroendocrine Tumor Research Foundation meets the remaining 17 Standards for Charity Accountability.

Stated Purpose:
"to fund research to discover cures and more effective treatments for neuroendocrine cancers."

Year, State Incorporated:
2004, MA

Also Known As:
NET Research Foundation

Neuroendocrine Tumor Research Foundation (NETRF) works to address the lack of funding research on neuroendocrine cancers, as well as the lack of educational resources. The organization hosts patient education series and promotes disease awareness. NETRF also provides educational materials, support, and open forum opportunities for patients, caregivers, researchers, and clinicians to connect and learn.

For the year ended December 31, 2024, Neuroendocrine Tumor Research Foundation's program expenses were:

Patient education $391,343
Outreach and support $92,938
Research $2,508,191
Total Program Expenses $2,992,472

Chief Executive
Elyse Gellerman, Chief Executive Officer

Compensation*
$199,006

Chair of the Board
Todd Gilman

Chair's Profession / Business Affiliation
Retired, President and Chief Operating Officer, Circa Information Tech., Inc.

Board Size
12

Paid Staff Size
7

*2024 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.

Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Direct mail appeals, Radio, Telemarketing, Print advertisements

Fundraising costs were 16% of related contributions. (Related contributions, which totaled $3,111,689, are donations received as a result of fundraising activities.)

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on Neuroendocrine Tumor Research Foundation's audited financial statements for the year ended December 31, 2024.

Source of Funds
Returned grant revenue $26,171
Investment income, net $1,897,575
Contributions, grants, and sponsorships $3,111,689
Total Income $5,035,435

Programs: 80% Fundraising: 13% Administrative: 7%

Total Income $5,035,435
Total expenses: $3,731,788
  Program expenses $2,992,472
  Fundraising expenses $492,545
  Administrative expenses $246,771
  Other expenses $0
Income in Excess of Expenses $1,303,647
Beginning Net Assets $15,532,754
Other Changes In Net Assets $0
Ending Net Assets $16,836,401
Total Liabilities $4,541,212
Total Assets $21,377,613

An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.

This report is not to be used for fundraising or promotional purposes.

RELATED CONTENT

Report completed by:
BBB Wise Giving Alliance