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CHARITY REVIEW
Issued: July 2024 Expires: July 2026

National Alopecia Areata Foundation

Accredited Charity
Accredited Charity

Meets Standards
Accreditation seal
(415) 472-3780
65 Mitchell Boulevard, Suite 200-B
San Rafael, CA, 94903
https://naaf.org
📄 Full Report 🖨️ Print 📋 BBB Charity Standards

Standards For Charity Accountability

Governance

  1. Board Oversight
  2. Board Size
  3. Board Meetings
  4. Board Compensation
  5. Conflict of Interest

Measuring Effectiveness

  1. Effectiveness Policy
  2. Effectiveness Report

Finances

  1. Program Expenses
  2. Fundraising Expenses
  3. Accumulating Funds
  4. Audit Report
  5. Detailed Expense Breakdown
  6. Accurate Expense Reporting
  7. Budget Plan

Fundraising & Info

  1. Truthful Materials
  2. Annual Report
  3. Website Disclosures
  4. Donor Privacy
  5. Cause Marketing Disclosures
  6. Complaints

National Alopecia Areata Foundation meets the 20 Standards for Charity Accountability.

Stated Purpose:
"to support research to find a cure or acceptable treatment for alopecia areata, support those with the disease, and educate the public about alopecia areata."

Year, State Incorporated:
1981, CA

National Alopecia Areata Foundation (NAAF) reports that its research program directs and funds research to find safe, effective treatments, and a cure for alopecia areata. In addition, the research program aids in hosting research summits, which brings together medical professionals to advance research. NAAF funds and manages the Alopecia Areata Registry, Biobank and Clinical Trials Network, a collection of alopecia areata data and biological samples. The organization reports that it provides support for local programs operating in 143 cities across the United States. Support materials include brochures, a school guide and DVD, a cosmetic toolkit, and an insurance packet. NAAF also operates Smart Patients, an online community for all ages, which works to educate the community and policymakers about alopecia areata and its effects on patients and their families

For the year ended December 31, 2023, National Alopecia Areata Foundation's program expenses were:

Support and education $804,228
Treatment development $706,150
Awareness and advocacy $392,570
Total Program Expenses $1,902,948

Chair of the Board
Ann Hollins

Chair's Profession / Business Affiliation
Chief People Officer, Vertex Inc.

Board Size
15

Paid Staff Size
10

*2023 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.

Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Direct mail appeals, Planned giving arrangements

Fundraising costs were 13% of related contributions. (Related contributions, which totaled $3,210,421, are donations received as a result of fundraising activities.)

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on National Alopecia Areata Foundation's audited financial statements for the year ended December 31, 2023.

Source of Funds
Contributions and sponsorships $2,646,475
Special events $510,946
Program service fees $256,841
Realized and unrealized gains on investments $78,100
Interest and dividends $67,988
Grants $53,000
Total Income $3,613,350

Programs: 75% Fundraising: 16% Administrative: 9%

Total Income $3,613,350
Total expenses: $2,545,046
  Program expenses $1,902,948
  Fundraising expenses $404,826
  Administrative expenses $237,272
  Other expenses $0
Income in Excess of Expenses $1,068,304
Beginning Net Assets $2,250,869
Other Changes In Net Assets $0
Ending Net Assets $3,319,173
Total Liabilities $170,487
Total Assets $3,489,660

An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.

This report is not to be used for fundraising or promotional purposes.

RELATED CONTENT

Report completed by:
BBB Wise Giving Alliance