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CHARITY REVIEW
Issued: July 2026 Expires: July 2028

Lymphatic Education and Research Network

Standards Not Met
Standards Not Met
1 6 7
(516) 625-9675
154 West 14th Street, 2nd Floor
New York, NY, 10011
https://lymphaticnetwork.org/
📄 Full Report 🖨️ Print 📋 BBB Charity Standards

Standards For Charity Accountability

Governance

  1. Board Oversight
  2. Board Size
  3. Board Meetings
  4. Board Compensation
  5. Conflict of Interest

Measuring Effectiveness

  1. Effectiveness Policy
  2. Effectiveness Report

Finances

  1. Program Expenses
  2. Fundraising Expenses
  3. Accumulating Funds
  4. Audit Report
  5. Detailed Expense Breakdown
  6. Accurate Expense Reporting
  7. Budget Plan

Fundraising & Info

  1. Truthful Materials
  2. Annual Report
  3. Website Disclosures
  4. Donor Privacy
  5. Cause Marketing Disclosures
  6. Complaints

Lymphatic Education and Research Network does not meet the following 3 Standards for Charity Accountability:

Standard 1 (Oversight of Operations and Staff)
Organizations shall have a board of directors that provides adequate oversight of the charity's operations and its staff. Indication of adequate oversight includes, but is not limited to, regularly scheduled appraisals of the CEO's performance, evidence of disbursement controls such as board approval of the budget, fund raising practices, establishment of a conflict of interest policy, and establishment of accounting procedures sufficient to safeguard charity finances.

LE&RN does not meet this Standard because its board of directors does not:

  • Have an approved conflict of interest policy.

Standard 6 (Board Policy on Effectiveness)
Have a board policy of assessing, no less than every two years, the organization's performance and effectiveness and of determining future actions required to achieve its mission.

LE&RN does not meet this Standard because:

  • The board of directors does not have a written policy stating that, at least Every 2 Years, an appraisal be done assessing the organization’s performance and effectiveness and determining future actions required to achieve its mission.

Standard 7 (Board Approval of Written Report on Effectiveness)
Submit to the organization's governing body, for its approval, a written report that outlines the results of the aforementioned performance and effectiveness assessment and recommendations for future actions.

LE&RN does not meet this Standard because:

  • The organization has not completed an effectiveness assessment in the last two years.

The BBB Wise Giving Alliance requested but did not receive complete information from the organization and is unable to verify the organization's compliance with the following Standard(s) for Charity Accountability: 3, 5, 14, 15, 16

Lymphatic Education and Research Network meets the remaining 12 Standards for Charity Accountability.

Stated Purpose:
"to fight lymphatic and related diseases through education, research, and advocacy."

Year, State Incorporated:
1998, NY

Also Known As:
Lymphatic Research Foundation

Lymphatic Education and Research Network (LE&RN) reports that it seeks to accelerate the prevention, treatment, and cure of lymphatic disease by bringing patients and medical professionals together to address the unmet needs surrounding lymphatic disorders, which include lymphedema and lipedema. The organization sponsors fellowship grants for scientists and clinicians to expand the pool of investigations in lymphatic research. In addition, LE&RN maintains a patient registry and biorepository which provides researchers with access to patient information and tissue samples to further research discoveries. The LE&RN Centers of Excellence also provide a network of multidisciplinary clinical care and service centers for individuals and families affected by lymphatic disease. Through LE&RN's education initiatives, the organization livestreams symposiums, publishes a peer-reviewed journal, and shares weekly newsletters.

For the year ended December 30, 2024, Lymphatic Education and Research Network's program expenses were:

Program services $1,444,913
Total Program Expenses $1,444,913

Chief Executive
William Repicci, President and Chief Executive Officer

Compensation*
$372,407

Chair of the Board
Dr. Melissa Aldrich

Chair's Profession / Business Affiliation
Associate Professor, IMM-Center for Molecular Imaging, McGovern Medical School

Board Size
7

Paid Staff Size
7

*2025 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.

Method(s) Used:
Direct mail appeals, Invitations to fund raising events, Grant proposals, Internet, Planned giving arrangements, Membership appeals

Fundraising costs were 4% of related contributions. (Related contributions, which totaled $1,609,046, are donations received as a result of fundraising activities.)

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on Lymphatic Education and Research Network's audited financial statements for the year ended December 30, 2024.

Source of Funds
Contributions $1,129,929
Center for Disease Control and Prevention grant $360,545
Interest and dividends $94,154
Gains on investments $76,120
New York State Department of Health grant $67,981
Special events, net $50,591
Total Income $1,779,320

Programs: 87% Fundraising: 4% Administrative: 9%

Total Income $1,779,320
Total expenses: $1,651,386
  Program expenses $1,444,913
  Fundraising expenses $62,333
  Administrative expenses $144,140
  Other expenses $0
Income in Excess of Expenses $127,934
Beginning Net Assets $3,470,773
Other Changes In Net Assets $0
Ending Net Assets $3,598,707
Total Liabilities $411,086
Total Assets $4,009,793

An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.

This report is not to be used for fundraising or promotional purposes.

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Report completed by:
BBB Wise Giving Alliance