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CHARITY REVIEW
Issued: January 2026 Expires: January 2028

Lupus Foundation of America Greater Ohio Chapter

Standards Not Met
Standards Not Met
3 16
(888) 665-8787
12930 Chippewa Road
Brecksville, OH, 44141
https://lupusgreaterohio.org
📄 Full Report 🖨️ Print 📋 BBB Charity Standards

Standards For Charity Accountability

Governance

  1. Board Oversight
  2. Board Size
  3. Board Meetings
  4. Board Compensation
  5. Conflict of Interest

Measuring Effectiveness

  1. Effectiveness Policy
  2. Effectiveness Report

Finances

  1. Program Expenses
  2. Fundraising Expenses
  3. Accumulating Funds
  4. Audit Report
  5. Detailed Expense Breakdown
  6. Accurate Expense Reporting
  7. Budget Plan

Fundraising & Info

  1. Truthful Materials
  2. Annual Report
  3. Website Disclosures
  4. Donor Privacy
  5. Cause Marketing Disclosures
  6. Complaints

Lupus Foundation of America Greater Ohio Chapter does not meet the following 2 Standards for Charity Accountability:

Standard 3 (Frequency and Attendance of Board Meetings)
An organization shall have a minimum of three evenly spaced meetings per year of the full governing body with a majority in attendance, with face-to-face participation. A conference call of the full board can substitute for one of the three meetings of the governing body. For all meetings, alternative modes of participation are acceptable for those with physical disabilities.

LFA Ohio does not meet this Standard because:

  • The board of directors held two meetings during the year ended September 30, 2024.

Standard 16 (Annual Report)
Have an annual report available to all, on request, that includes: (a) the organization's mission statement, (b) a summary of the past year's program service accomplishments, (c) a roster of the officers and members of the board of directors, (d) financial information that includes (i) total income in the past fiscal year, (ii) expenses in the same program, fund raising and administrative categories as in the financial statements, and (iii) ending net assets.

LFA Ohio does not meet this Standard because:

  • The organization's annual report does not include end of year assets

Lupus Foundation of America Greater Ohio Chapter meets the remaining 18 Standards for Charity Accountability.

Stated Purpose:
"to improve the quality of life for all people affected by lupus through programs of research, education, and advocacy."

Year, State Incorporated:
1977, OH

Lupus Foundation of America Greater Ohio Chapter (LFA Ohio) reports that it works to provide education and support for those affected by lupus across the state of Ohio. Educational events include classes, led by a registered nurse, for those newly diagnosed with lupus, health fairs and community outreach events, and medical summits with physicians, social workers, dietitians, physical therapists, and psychologists. The organization offers support groups with facilitators trained by its chapter to those suffering from lupus and their families. LFA Ohio also distributes inquiry packets to lupus patients and caregivers across Ohio and provides medical content via its patient-focused website. LFA Ohio's informational resources include, "Living with Lupus" magazine, "Lupus Night Light" blog and "Could You Have Lupus" online self-assessment test. LFA Ohio also advocates for governmental lupus research funding on the state and national levels.

For the year ended September 30, 2024, Lupus Foundation of America Greater Ohio Chapter's program expenses were:

Program expenses $452,640
Total Program Expenses $452,640

Chief Executive
Suzanne Tierney, President and Chief Executive Officer

Compensation*
$96,545

Chair of the Board
Marie Rey Woyma

Chair's Profession / Business Affiliation
Administrative Assistant, Cleveland Clinic

Board Size
11

Paid Staff Size
8

*2023 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.

Method(s) Used:
Direct mail appeals, Invitations to fund raising events, Print advertisements (newspapers, magazines, etc.), Radio, Grant proposals, Internet, Planned giving arrangements, Membership appeals, Workplace Giving

Fundraising costs were 37% of related contributions. (Related contributions, which totaled $265,744, are donations received as a result of fundraising activities.)

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on Lupus Foundation of America Greater Ohio Chapter's audited financial statements for the year ended September 30, 2024.

Source of Funds
Grants $130,950
Contributions $76,182
Special events $57,887
Miscellaneous income $912
Membership $725
Total Income $266,656

Programs: 74% Fundraising: 16% Administrative: 10%

Total Income $266,656
Total expenses: $613,529
  Program expenses $452,640
  Fundraising expenses $98,311
  Administrative expenses $62,578
  Other expenses $0
Income in Excess of Expenses $-346,873
Beginning Net Assets $330,861
Other Changes In Net Assets $0
Ending Net Assets $-16,012
Total Liabilities $274,707
Total Assets $258,695

An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.

This report is not to be used for fundraising or promotional purposes.

RELATED CONTENT

Report completed by:
BBB Serving Greater Cleveland