Les Turner ALS Foundation
Meets Standards
Standards For Charity Accountability
Governance
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Board Oversight
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Board Size
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Board Meetings
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Board Compensation
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Conflict of Interest
Measuring Effectiveness
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Effectiveness Policy
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Effectiveness Report
Finances
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Program Expenses
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Fundraising Expenses
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Accumulating Funds
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Audit Report
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Detailed Expense Breakdown
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Accurate Expense Reporting
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Budget Plan
Fundraising & Info
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Truthful Materials
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Annual Report
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Website Disclosures
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Donor Privacy
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Cause Marketing Disclosures
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Complaints
Les Turner ALS Foundation meets the 20 Standards for Charity Accountability.
Stated Purpose:
To provide the most comprehensive care and support to people living with ALS and their families so they can confidently navigate the disease, and advance scientific research for the prevention, treatment and cure of ALS.
Year, State Incorporated:
1977, IL
Founded in 1977, the Les Turner ALS Foundation provides comprehensive care and support to people living with Amyotrophic lateral sclerosis (ALS) and their families. We aim to advance scientific research for the prevention, treatment, and cure of ALS. Our individualized approach ensures each person receives the best quality of care and access to promising therapies, helping them maintain independence and enjoy an improved quality of life through symptom management, assistive technology, education, and emotional support.
For the year ended December 31, 2023, Les Turner ALS Foundation's program expenses were:
| Support services | $839,039 |
| Research | $720,000 |
| Education | $580,770 |
| Lois Insolia ALS Clinic | $375,000 |
| Endowed Fund | $100,000 |
| Education | $22,914 |
| Total Program Expenses | $2,637,723 |
Chief Executive
Laura Freveletti, CEO
Chair of the Board
Erin Reardon Cohn, Board Chairperson
Chair's Profession / Business Affiliation
Board Size
20
Paid Staff Size
17
Method(s) Used:
Direct mail appeals, Invitations to fund raising events, Radio, Grant proposals, Internet, Planned giving arrangements, Cause-related marketing (affinity credit cards, consumer product sales, etc.), Appeals via Social Media (Facebook, etc.)
This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on Les Turner ALS Foundation's audited financial statements for the year ended December 31, 2023.
Source of Funds
| Individuals, corporations, and foundations | $1,781,787 |
| Special events less direct cost of 885,074 | $755,756 |
| Interest income | $102,365 |
| Grants | $42,500 |
| Total Income | $2,682,408 |
Programs: 79% Fundraising: 13% Administrative: 8%
| Total Income | $2,682,408 |
| Total expenses: | $3,355,940 |
| Program expenses | $2,637,723 |
| Fundraising expenses | $449,089 |
| Administrative expenses | $269,128 |
| Other expenses | $0 |
| Income in Excess of Expenses | $-673,532 |
| Beginning Net Assets | $2,165,267 |
| Other Changes In Net Assets | $0 |
| Ending Net Assets | $1,491,735 |
| Total Liabilities | $1,795,025 |
| Total Assets | $3,286,760 |
An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.
This report is not to be used for fundraising or promotional purposes.
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Meets Standards
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Standards Not Met
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Did Not Disclose
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Review in Progress
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Unable to Verify
Report completed by:
BBB of Chicago & Northern Illinois