Hydrocephalus Association
Meets Standards
Standards For Charity Accountability
Governance
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Board Oversight
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Board Size
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Board Meetings
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Board Compensation
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Conflict of Interest
Measuring Effectiveness
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Effectiveness Policy
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Effectiveness Report
Finances
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Program Expenses
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Fundraising Expenses
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Accumulating Funds
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Audit Report
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Detailed Expense Breakdown
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Accurate Expense Reporting
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Budget Plan
Fundraising & Info
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Truthful Materials
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Annual Report
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Website Disclosures
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Donor Privacy
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Cause Marketing Disclosures
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Complaints
Hydrocephalus Association meets the 20 Standards for Charity Accountability.
Stated Purpose:
"to find a cure for hydrocephalus and improve the lives of those impacted by the condition."
Year, State Incorporated:
1986, DE
The Hydrocephalus Association (HA) reports that it funds research and provides support and educational resources for patients, caregivers and advocates on behalf of the hydrocephalus community on key policies and legislation. HA supports research through the HA Patient Powered Interactive Engagement Registry (HAPPIER), the HA Network for Discovery Science (HANDS), the Hydrocephalus Clinical Research Network (HCRN), and Adult HCRN (AHCRN). The organization also provides direct support through phone calls, emails, social media, and local support groups, all with the aim of providing the community opportunities to find friendship and receive education. HA's advocacy steering committee continues to monitor and support legislation that benefits the hydrocephalus community.
For the year ended December 31, 2022, Hydrocephalus Association's program expenses were:
Research: $1,194,677
Public support and education: $1,217,696
Advocacy: $75,575
Conferences: $553,160
Total Program Expenses: $3,041,108
Chief Executive
Diana Gray, President and Chief Executive Officer
Compensation*
$237,463
Chair of the Board
Jason Preston
Chair's Profession / Business Affiliation
Co-Founder, Dent the Future
Board Size
19
Paid Staff Size
20
*2022 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Direct mail appeals, Radio, Print advertisements
Fundraising costs were 2% of related contributions. (Related contributions, which totaled $4,029,302, are donations received as a result of fundraising activities.)
This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on Hydrocephalus Association's audited financial statements for the year ended December 31, 2022.
Source of Funds
| Investment loss, net | $-119,529 |
| Grants and contributions | $2,251,149 |
| Special events, net | $1,778,153 |
| Conference fees | $63,919 |
| Merchandise sales, net | $6,765 |
| Miscellaneous income | $150 |
| Interest and dividends | $48,407 |
| Total Income | $4,029,014 |
Programs: 84% Fundraising: 3% Administrative: 13%
| Total Income | $4,029,014 |
| Total expenses: | $3,617,494 |
| Program expenses | $3,041,108 |
| Fundraising expenses | $97,558 |
| Administrative expenses | $478,828 |
| Other expenses | $0 |
| Income in Excess of Expenses | $411,520 |
| Beginning Net Assets | $3,252,729 |
| Other Changes In Net Assets | $0 |
| Ending Net Assets | $3,664,249 |
| Total Liabilities | $852,119 |
| Total Assets | $4,516,368 |
An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.
This report is not to be used for fundraising or promotional purposes.
RELATED CONTENT
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Meets Standards
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Standards Not Met
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Did Not Disclose
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Review in Progress
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Unable to Verify
Report completed by:
BBB Wise Giving Alliance