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CHARITY REVIEW
Issued: April 2026 Expires: April 2028

Hydrocephalus Association

Unable to Verify
Unable to Verify
1 13 14 16 19
(888) 598-3789
6903 Rockledge Drive, Suite 740
North Bethesda, MD, 20817
https://hydroassoc.org/
📄 Full Report 🖨️ Print 📋 BBB Charity Standards

Standards For Charity Accountability

Governance

  1. Board Oversight
  2. Board Size
  3. Board Meetings
  4. Board Compensation
  5. Conflict of Interest

Measuring Effectiveness

  1. Effectiveness Policy
  2. Effectiveness Report

Finances

  1. Program Expenses
  2. Fundraising Expenses
  3. Accumulating Funds
  4. Audit Report
  5. Detailed Expense Breakdown
  6. Accurate Expense Reporting
  7. Budget Plan

Fundraising & Info

  1. Truthful Materials
  2. Annual Report
  3. Website Disclosures
  4. Donor Privacy
  5. Cause Marketing Disclosures
  6. Complaints

The BBB Wise Giving Alliance requested but did not receive complete information from the organization and is unable to verify the organization's compliance with the following Standard(s) for Charity Accountability: 1, 13, 14, 16, 19

Hydrocephalus Association meets the remaining 15 Standards for Charity Accountability.

Stated Purpose:
"to find a cure for hydrocephalus and improve the lives of those impacted by the condition."

Year, State Incorporated:
1986, DE

The Hydrocephalus Association (HA) reports that it funds research that is aligned with patient-identified priorities to improve understanding of the condition, identify and test new treatments, move discoveries toward clinical use, enhance diagnosis, improve access to care, and elevate the quality of life of those living with Hydrocephalus. The organization also provides direct support and educational resources to patients and caregivers. In 2024, HA reported that its staff provided one-on-one support through phone calls, emails, and interactions on social media totaling over 5,100 touches, in addition to 201 virtual social gatherings and/or educational meetings. HA states that it also monitors and supports legislation that will benefit the Hydrocephalus community.

For the year ended December 30, 2024, Hydrocephalus Association's program expenses were:

Public support and education $1,472,850
Research $1,434,344
Conferences $672,925
Avocacy $208,244
Total Program Expenses $3,788,363

Chief Executive
Diana Gray, President and Chief Executive Officer

Compensation*
$263,299

Chair of the Board
Stephanie (Buffa) Vogt, MS

Chair's Profession / Business Affiliation
Vice President of Operations, RxBenefits

Board Size
18

Paid Staff Size
18

*2024 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.

Method(s) Used:
Direct mail appeals, Invitations to fund raising events, Grant proposals, Internet, Planned giving arrangements, Cause-related marketing (affinity credit cards, consumer product sales, etc.), Workplace Giving

Fundraising costs were 3% of related contributions. (Related contributions, which totaled $3,248,628, are donations received as a result of fundraising activities.)

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on Hydrocephalus Association's audited financial statements for the year ended December 30, 2024.

Source of Funds
Special events, net $1,785,303
Grants and contributions $1,456,230
Investment income, net $132,172
Interest and dividends $124,449
Conference fees, net $73,155
Miscellaneous income $40,714
In-kind contributions $7,095
Merchandise sales, net $6,824
Total Income $3,625,942

Programs: 86% Fundraising: 2% Administrative: 12%

Total Income $3,625,942
Total expenses: $4,402,900
  Program expenses $3,788,363
  Fundraising expenses $105,462
  Administrative expenses $509,075
  Other expenses $0
Income in Excess of Expenses $-776,958
Beginning Net Assets $3,746,780
Other Changes In Net Assets $0
Ending Net Assets $2,969,822
Total Liabilities $488,203
Total Assets $3,458,025

Note: According to HA's 2024 audited financial statements, the organization received in-kind contributions totaling $7,095 in the form of donated program materials.

An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.

This report is not to be used for fundraising or promotional purposes.

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Report completed by:
BBB Wise Giving Alliance