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CHARITY REVIEW
Issued: March 2024 Expires: March 2026

Hydrocephalus Association

Accredited Charity
Accredited Charity

Meets Standards

4340 East West Highway, Suite 905
Bethesda, MD, 20814

Standards For Charity Accountability

Governance

  1. Board Oversight
  2. Board Size
  3. Board Meetings
  4. Board Compensation
  5. Conflict of Interest

Measuring Effectiveness

  1. Effectiveness Policy
  2. Effectiveness Report

Finances

  1. Program Expenses
  2. Fundraising Expenses
  3. Accumulating Funds
  4. Audit Report
  5. Detailed Expense Breakdown
  6. Accurate Expense Reporting
  7. Budget Plan

Fundraising & Info

  1. Truthful Materials
  2. Annual Report
  3. Website Disclosures
  4. Donor Privacy
  5. Cause Marketing Disclosures
  6. Complaints

Hydrocephalus Association meets the 20 Standards for Charity Accountability.

Stated Purpose:
"to find a cure for hydrocephalus and improve the lives of those impacted by the condition."

Year, State Incorporated:
1986, DE

The Hydrocephalus Association (HA) reports that it funds research and provides support and educational resources for patients, caregivers and advocates on behalf of the hydrocephalus community on key policies and legislation. HA supports research through the HA Patient Powered Interactive Engagement Registry (HAPPIER), the HA Network for Discovery Science (HANDS), the Hydrocephalus Clinical Research Network (HCRN), and Adult HCRN (AHCRN). The organization also provides direct support through phone calls, emails, social media, and local support groups, all with the aim of providing the community opportunities to find friendship and receive education. HA's advocacy steering committee continues to monitor and support legislation that benefits the hydrocephalus community.

For the year ended December 31, 2022, Hydrocephalus Association's program expenses were:

Research: $1,194,677

Public support and education: $1,217,696

Advocacy: $75,575

Conferences: $553,160

Total Program Expenses: $3,041,108

Chief Executive
Diana Gray, President and Chief Executive Officer

Compensation*
$237,463

Chair of the Board
Jason Preston

Chair's Profession / Business Affiliation
Co-Founder, Dent the Future

Board Size
19

Paid Staff Size
20

*2022 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.

Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Direct mail appeals, Radio, Print advertisements

Fundraising costs were 2% of related contributions. (Related contributions, which totaled $4,029,302, are donations received as a result of fundraising activities.)

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on Hydrocephalus Association's audited financial statements for the year ended December 31, 2022.

Source of Funds
Investment loss, net $-119,529
Grants and contributions $2,251,149
Special events, net $1,778,153
Conference fees $63,919
Merchandise sales, net $6,765
Miscellaneous income $150
Interest and dividends $48,407
Total Income $4,029,014

Programs: 84% Fundraising: 3% Administrative: 13%

Total Income $4,029,014
Total expenses: $3,617,494
  Program expenses $3,041,108
  Fundraising expenses $97,558
  Administrative expenses $478,828
  Other expenses $0
Income in Excess of Expenses $411,520
Beginning Net Assets $3,252,729
Other Changes In Net Assets $0
Ending Net Assets $3,664,249
Total Liabilities $852,119
Total Assets $4,516,368

An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.

This report is not to be used for fundraising or promotional purposes.

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Report completed by:
BBB Wise Giving Alliance