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CHARITY REVIEW
Issued: September 2022 Expires: March 2025

ALS Northwest

Accredited Charity
Accredited Charity

Meets Standards
Accreditation seal
(800) 681-9851
825 NE Multnomah St
Portland, OR, 97232
http://www.alsnorthwest.org
📄 Full Report 🖨️ Print 📋 BBB Charity Standards

Standards For Charity Accountability

Governance

  1. Board Oversight
  2. Board Size
  3. Board Meetings
  4. Board Compensation
  5. Conflict of Interest

Measuring Effectiveness

  1. Effectiveness Policy
  2. Effectiveness Report

Finances

  1. Program Expenses
  2. Fundraising Expenses
  3. Accumulating Funds
  4. Audit Report
  5. Detailed Expense Breakdown
  6. Accurate Expense Reporting
  7. Budget Plan

Fundraising & Info

  1. Truthful Materials
  2. Annual Report
  3. Website Disclosures
  4. Donor Privacy
  5. Cause Marketing Disclosures
  6. Complaints

ALS Northwest meets the 20 Standards for Charity Accountability.

Stated Purpose:
To provide comprehensive support and advocacy for people with ALS and their families, while advancing research for new treatments and an end to ALS.

Year, State Incorporated:
2002, OR

Also Known As:
The ALS Association Chapter of Oregon and Southwest Washington

Since its inception in 2002, the local chapter of The ALS Association is the central source for services and education for people with ALS, their families, caregivers, and health care professionals in all of Oregon and the six counties of SW Washington. The progression of ALS varies significantly from one person to another. Responding to each person’s individual needs, The ALS Association's local chapter is available to provide vital services and reliable information through strategic community partnerships.

A sampling of services provided free of charge:
On-staff Care Services Coordinators who offer individual support and home visits to assess needs, suggest equipment, connect with local resources and help families plan.

ALS Association Certified Center of Excellence partnerships with Providence Brain & Spine Institute and the Portland VA Health System.

ALS Association Clinic partnerships with OHSU, Kaiser Permanente, St. Charles Health System, The Center and Asante Health System.

Medical Equipment Program in partnership with Numotion and Norco Medical to loan equipment to aid in daily living activities and with mobility.

Augmentative Communication and Assistive Technology Program to support communication, access and technology needs.

Chapter Grant Program that funds a myriad of reimbursable, ALS-related expenses such as respite care, counseling, co-pays for healthcare costs, home modifications, and more.

Caregiver Support Program to provide family caregiver focused support groups, Care Connections guidance, and referrals.

Monthly Support Group Program for people living with ALS, family members, and friends.

Support and resources for children, in partnership with The Dougy Center, who have ALS in their families.

Bereavement Support Program for family members and friends who have lost a loved one to ALS.

Education and Outreach to health care professionals, home health care agencies and the community with updates on current ALS needs and solutions.

For the year ended January 31, 2021, ALS Northwest's program expenses were:

Outreach services $870,553
Independence programs $276,191
Clinics $222,296
Education and support $205,514
Caregiver support $124,740
Total Program Expenses $1,699,294

Chief Executive
Lance Christian, Executive Director

Chair of the Board
Ms. Amy Frazey, AVP Investment Administration

Chair's Profession / Business Affiliation
StanCorp Mortgage Investors LLC

Board Size
16

Paid Staff Size
17

Method(s) Used:
Direct mail appeals, Invitations to fund raising events, Print advertisements (newspapers, magazines, etc.), Grant proposals, Internet, Planned giving arrangements, Appeals via Social Media (Facebook, etc.)

% of Related Contributions on Fundraising: 7.07%

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on ALS Northwest's audited financial statements for the year ended January 31, 2021.

Source of Funds
Contributions $2,204,466
Special event revenue, less direct expenses of $30,132 $251,331
Grants and contracts $83,740
Interest income $1,733
Total Income $2,541,270

Programs: 83% Fundraising: 9% Administrative: 8%

Total Income $2,541,270
Total expenses: $2,035,185
  Program expenses $1,699,294
  Fundraising expenses $179,574
  Administrative expenses $156,317
  Other expenses $0
Income in Excess of Expenses $506,085
Beginning Net Assets $1,794,763
Other Changes In Net Assets $0
Ending Net Assets $2,300,848
Total Liabilities $309,442
Total Assets $2,610,290

An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.

This report is not to be used for fundraising or promotional purposes.

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Report completed by:
BBB Great West - Pacific