Team Telomere
Meets Standards
Standards For Charity Accountability
Governance
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Board Oversight
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Board Size
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Board Meetings
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Board Compensation
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Conflict of Interest
Measuring Effectiveness
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Effectiveness Policy
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Effectiveness Report
Finances
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Program Expenses
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Fundraising Expenses
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Accumulating Funds
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Audit Report
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Detailed Expense Breakdown
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Accurate Expense Reporting
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Budget Plan
Fundraising & Info
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Truthful Materials
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Annual Report
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Website Disclosures
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Donor Privacy
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Cause Marketing Disclosures
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Complaints
Team Telomere meets the 20 Standards for Charity Accountability.
Stated Purpose:
"to empower individuals worldwide impacted by Telomere Biology Disorders with information and support services, to advance improved diagnosis through education and advocacy, and to accelerate the medical and scientific community’s research in finding causes, effective treatments, and a path towards a cure."
Year, State Incorporated:
2009, NY
Team Telomere reports that works to ensure that those impacted by Telomere Biology Disorders (TBDs), including the affected individuals, caregivers, researchers, and clinicians, have accessible care, community, and resources. The organization carries out programs supporting individuals and families affected by TBDs through community services, education, and research-focused initiatives. Team Telomere also administers the Nancy Cornelius Scholarship Fund to support the educational advancement of young adults living with TBDs. In 2024, Team Telomere states that it served more than 700 patient families and engaged more than 300 clinicians and researchers across more than 30 countries. In addition, the organization reports that it hosted a biennial Scientific and Community Summit, a four-day educational and collaborative event attended by approximately 225 participants from 10 countries, along with holding approximately 12 virtual Community Chats on topics related to diagnosis, clinical management, and multidisciplinary care.
For the year ended December 31, 2024, Team Telomere's program expenses were:
| Program services | $474,413 |
| Total Program Expenses | $474,413 |
Chief Executive
Katie Stevens, Executive Director
Compensation*
$125,000
Chair of the Board
Allison Kiene, JD
Chair's Profession / Business Affiliation
Attorney
Board Size
6
Paid Staff Size
2
*2024 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
Method(s) Used:
Invitations to fund raising events, Grant proposals, Internet, Planned giving arrangements, Workplace Giving
Fundraising costs were 18% of related contributions. (Related contributions, which totaled $396,339, are donations received as a result of fundraising activities.)
This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on Team Telomere's unaudited financial statements for the year ended December 31, 2024.
Source of Funds
| Contributions and grants | $313,626 |
| Summit Sponsorships | $82,713 |
| Program service revenue | $18,165 |
| Interest income | $11,281 |
| Miscellaneous income | $2,689 |
| Total Income | $428,474 |
Programs: 77% Fundraising: 12% Administrative: 12%
| Total Income | $428,474 |
| Total expenses: | $616,711 |
| Program expenses | $474,413 |
| Fundraising expenses | $71,314 |
| Administrative expenses | $70,984 |
| Other expenses | $0 |
| Income in Excess of Expenses | $-188,237 |
| Beginning Net Assets | $462,451 |
| Other Changes In Net Assets | $0 |
| Ending Net Assets | $274,214 |
| Total Liabilities | $42,025 |
| Total Assets | $316,239 |
An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.
This report is not to be used for fundraising or promotional purposes.
RELATED CONTENT
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Meets Standards
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Standards Not Met
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Did Not Disclose
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Review in Progress
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Unable to Verify
Report completed by:
BBB Great West - Pacific