American Association of Kidney Patients
Standards For Charity Accountability
Governance
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Board Oversight
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Board Size
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Board Meetings
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Board Compensation
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Conflict of Interest
Measuring Effectiveness
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Effectiveness Policy
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Effectiveness Report
Finances
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Program Expenses
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Fundraising Expenses
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Accumulating Funds
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Audit Report
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Detailed Expense Breakdown
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Accurate Expense Reporting
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Budget Plan
Fundraising & Info
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Truthful Materials
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Annual Report
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Website Disclosures
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Donor Privacy
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Cause Marketing Disclosures
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Complaints
American Association of Kidney Patients does not meet the following 7 Standards for Charity Accountability:
Standard 3 (Frequency and Attendance of Board Meetings)
An organization shall have a minimum of three evenly spaced meetings per year of the full governing body with a majority in attendance, with face-to-face participation. A conference call of the full board can substitute for one of the three meetings of the governing body. For all meetings, alternative modes of participation are acceptable for those with physical disabilities.
AAKP does not meet this Standard because:
- The board of directors held one board meeting for the year ended June 30, 2024.
Standard 6 (Board Policy on Effectiveness)
Have a board policy of assessing, no less than every two years, the organization's performance and effectiveness and of determining future actions required to achieve its mission.
AAKP does not meet this Standard because:
- The board of directors does not have a written policy stating that, at least every two years, an appraisal be done assessing the organization’s performance and effectiveness and determining future actions required to achieve its mission.
Standard 7 (Board Approval of Written Report on Effectiveness)
Submit to the organization's governing body, for its approval, a written report that outlines the results of the aforementioned performance and effectiveness assessment and recommendations for future actions.
AAKP does not meet this Standard because:
- The organization has not completed an effectiveness assessment in the last two years.
Standard 14 (Budget)
Have a board-approved annual budget for its current fiscal year, outlining projected expenses for major program activities, fund raising, and administration.
AAKP does not meet this Standard because, when the organization provided 2024 budget information, it indicated that the budget:
- Did not identify total projected fundraising expenses.
- Did not identify total projected administrative expenses.
Standard 16 (Annual Report)
Have an annual report available to all, on request, that includes: (a) the organization's mission statement, (b) a summary of the past year's program service accomplishments, (c) a roster of the officers and members of the board of directors, (d) financial information that includes (i) total income in the past fiscal year, (ii) expenses in the same program, fund raising and administrative categories as in the financial statements, and (iii) ending net assets.
AAKP does not meet this Standard because the 2023 annual report did not include:
- A roster of the board of directors.
- The organization's financial information for the year ending June 30, 2023.
Standard 17 (Web Site Disclosures)
Include on any charity websites that solicit contributions, the same information that is recommended for annual reports, as well as the mailing address of the charity and electronic access to its most recent IRS Form 990.
AAKP does not meet this Standard because the organization’s website, https://aakp.org, does not include all of the recommended information for those charity websites that solicit for donations. Specifically, it does not include:
- Electronic access to the organization’s 990 for the year ending June 30, 2023.
Standard 18 (Privacy for Written Appeals & Internet Privacy)
Address privacy concerns of donors by (a) providing in written appeals, at least annually, a means (e.g., such as a check off box) for both new and continuing donors to inform the charity if they do not want their name and address shared outside the organization, (b) providing a clear, prominent and easily accessible privacy policy on any of its websites that tells visitors (i) what information, if any, is being collected about them by the charity and how this information will be used, (ii) how to contact the charity to review personal information collected and request corrections, (iii) how to inform the charity (e.g., a check off box) that the visitor does not wish his/her personal information to be shared outside the organization, and (iv) what security measures the charity has in place to protect personal information.
AAKP does not meet this Standard because the privacy policy on its website, https://aakp.org, does not indicate:
- What security measures are in place to protect personal information that is collected.
The BBB Wise Giving Alliance requested but did not receive complete information from the organization and is unable to verify the organization's compliance with the following Standard(s) for Charity Accountability: 13, 15
American Association of Kidney Patients meets the remaining 11 Standards for Charity Accountability.
Stated Purpose:
"to improve the lives and long-term outcomes of kidney patients through education, advocacy, patient engagement and the fostering of patient communities."
Year, State Incorporated:
1969, FL
American Association of Kidney Patients (AAKP) reports that it fights for early disease detection and diagnosis of rare/genetic conditions; increased kidney transplantation and pre-emptive transplantation; full patient choice of either in-center or home dialysis; protection of the patient/physician relationship; promotion of research and innovation including artificial implantable and wearable kidneys; and the elimination of barriers for patient access to available treatment options. AAKP educates patients and caregivers on important issues so patients can better understand their condition and make informed decisions on their care options. The organization advocates for policies that improve treatment and extend life for kidney disease patients. AAKP advocates for improved access to healthcare through regulatory and legislative reform at the Federal level. AAKP reports that it leads efforts to bring kidney patients together to promote community, conversations and to seek out services that help maximize patients’ everyday lives.
For the year ended June 30, 2023, American Association of Kidney Patients's program expenses were:
| Program services | $1,738,007 |
| Total Program Expenses | $1,738,007 |
Chief Executive
Diana Clynes, Executive Director
Compensation*
$150,000
Chair of the Board
Edward V. Hickey III
Chair's Profession / Business Affiliation
Attorney, O'Melveny & Myers
Board Size
15
Paid Staff Size
7
*2022 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Membership appeals, Planned giving arrangements, Print advertisements (newspapers, magazines, etc.), Cause-related marketing (affinity credit cards, consumer product sales, etc.)
Fundraising costs were 2% of related contributions. (Related contributions, which totaled $1,845,843, are donations received as a result of fundraising activities.)
This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on American Association of Kidney Patients's audited financial statements for the year ended June 30, 2023.
Source of Funds
| Grants and contracts | $736,359 |
| Membership dues | $588,980 |
| Bequests and memorials | $445,730 |
| Annual meeting fees | $409,455 |
| Global Summit fees | $236,075 |
| Policy Summit fees | $148,750 |
| Contributions | $51,153 |
| Inventory sales | $22,901 |
| Other revenue | $19,522 |
| Special events, net | $19,266 |
| In-kind contributions | $4,355 |
| Total Income | $2,682,546 |
Programs: 81% Fundraising: 2% Administrative: 17%
| Total Income | $2,682,546 |
| Total expenses: | $2,136,388 |
| Program expenses | $1,738,007 |
| Fundraising expenses | $43,495 |
| Administrative expenses | $354,886 |
| Other expenses | $0 |
| Income in Excess of Expenses | $546,158 |
| Beginning Net Assets | $1,923,326 |
| Other Changes In Net Assets | $0 |
| Ending Net Assets | $2,469,484 |
| Total Liabilities | $647,645 |
| Total Assets | $3,117,129 |
Note: According to AAKP's audited financial statements for the year ended June 30, 2023, the organization received in-kind contributions totaling $4,355 in the form of donated professional services.
An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.
This report is not to be used for fundraising or promotional purposes.
RELATED CONTENT
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Meets Standards
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Standards Not Met
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Did Not Disclose
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Review in Progress
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Unable to Verify
Report completed by:
BBB Wise Giving Alliance