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CHARITY REVIEW
Issued: May 2025 Expires: October 2026

Pulmonary Hypertension Association

Accredited Charity
Accredited Charity

Meets Standards
(301) 565-3004
1121 14th Street NW, Suite 150
Washington, DC, 20005
https://phassociation.org/
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Standards For Charity Accountability

Governance

  1. Board Oversight
  2. Board Size
  3. Board Meetings
  4. Board Compensation
  5. Conflict of Interest

Measuring Effectiveness

  1. Effectiveness Policy
  2. Effectiveness Report

Finances

  1. Program Expenses
  2. Fundraising Expenses
  3. Accumulating Funds
  4. Audit Report
  5. Detailed Expense Breakdown
  6. Accurate Expense Reporting
  7. Budget Plan

Fundraising & Info

  1. Truthful Materials
  2. Annual Report
  3. Website Disclosures
  4. Donor Privacy
  5. Cause Marketing Disclosures
  6. Complaints

Pulmonary Hypertension Association meets the 20 Standards for Charity Accountability.

Stated Purpose:
"to extend and improve the lives of those affected by pulmonary hypertension."

Year, State Incorporated:
1998, MD

Pulmonary Hypertension Association (PHA) reports that it serves the community of individuals with pulmonary hypertension, caregivers, families, medical professionals, and researchers to support research toward improved treatments and address the needs of the community. The organization offers patient and caregiver support, medical education, and research and services to improve patients’ quality of life. PHA states that it facilitates more than 200 active support groups around the country and partners with more than 85 international pulmonary hypertension organizations. The organization also offers a telephone support line, an email mentorship program, educational patient programs, and a variety of print and online publications. In addition, PHA hosts its International Pulmonary Hypertension Conference and Scientific Sessions, which brings together nearly 1,500 individuals with pulmonary hypertension, caregivers, and medical professionals to share information on the latest research, treatments, and lifestyle coping tips.

For the year ended December 31, 2022, Pulmonary Hypertension Association's program expenses were:

Patient advocacy and research $4,248,961
Accreditation and registry $615,551
Total Program Expenses $4,864,512

Chief Executive
Matias Granato, President and Chief Executive Officer

Compensation*
$286,096

Chair of the Board
Anton Lahnston

Chair's Profession / Business Affiliation
Manufacturing Executive

Board Size
20

Paid Staff Size
37

*2022 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.

Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Direct mail appeals, Membership appeals, Planned giving arrangements, Print advertisements (newspapers, magazines, etc.), Telephone appeals

Fundraising costs were 14% of related contributions. (Related contributions, which totaled $5,394,808, are donations received as a result of fundraising activities.)

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on Pulmonary Hypertension Association's audited financial statements for the year ended December 31, 2022.

Source of Funds
Contributions and grants $5,394,808
Registry $350,000
Accreditation fees $302,500
Registration $210,364
Membership dues $171,174
Advertising $94,739
Merchandise sales $1,742
Other income $1,000
Investment income, net $-2,041,475
Total Income $4,484,852

Programs: 70% Fundraising: 11% Administrative: 20%

Total Income $4,484,852
Total expenses: $6,972,862
  Program expenses $4,864,512
  Fundraising expenses $737,012
  Administrative expenses $1,371,338
  Other expenses $0
Income in Excess of Expenses $-2,488,010
Beginning Net Assets $21,522,067
Other Changes In Net Assets $0
Ending Net Assets $19,034,057
Total Liabilities $3,605,287
Total Assets $22,639,344

An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.

This report is not to be used for fundraising or promotional purposes.

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Report completed by:
BBB Wise Giving Alliance