Cystic Fibrosis Foundation
Meets Standards
Standards For Charity Accountability
Governance
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Board Oversight
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Board Size
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Board Meetings
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Board Compensation
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Conflict of Interest
Measuring Effectiveness
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Effectiveness Policy
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Effectiveness Report
Finances
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Program Expenses
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Fundraising Expenses
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Accumulating Funds
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Audit Report
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Detailed Expense Breakdown
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Accurate Expense Reporting
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Budget Plan
Fundraising & Info
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Truthful Materials
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Annual Report
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Website Disclosures
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Donor Privacy
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Cause Marketing Disclosures
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Complaints
Cystic Fibrosis Foundation meets the 20 Standards for Charity Accountability.
Stated Purpose:
to cure cystic fibrosis and to provide all people with CF the opportunity to lead long, fulfilling lives by funding research and drug development, partnering with the CF community, and advancing high-quality, specialized care."
Year, State Incorporated:
1955, DE
Cystic Fibrosis Foundation's (CF) research efforts include a dedicated CFF Therapeutics Lab, which conducts CF research to advance new therapies. CFF also maintains a Patient Registry, collecting information on the health status of people with CF in the U.S. to inform and improve research and care. The organization reports that it has more than 70 chapter offices and funds and accredits more than 120 care centers nationwide to provide specialized care to people with CF. It also advocates for programs and policies at the local, state, and federal levels that help advance research and drug development, improve access to CF care, and raise awareness about the disease. CFF's Compass program helps people with CF, their families, and their care teams with insurance, financial, legal, and other issues. The organization also organizes programs to listen to, support, and partner with the CF community. CFF also educates and raises awareness of cystic fibrosis through content on its website, publications, video, and social media.
For the year ended December 31, 2022, Cystic Fibrosis Foundation's program expenses were:
Medical programs: $282,331,776
Community services: $21,891,088
Public and professional information and education: $19,125,953
Total Program Expenses: $323,348,817
Chief Executive
Michael P. Boyle, President and Chief Executive Officer
Compensation*
$1,349,782
Chair of the Board
KC Bryan White
Chair's Profession / Business Affiliation
Assistant Instructor, Applied Positive Psychology Program, The University of Pennsylvania
Board Size
16
Paid Staff Size
738
*2022 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances. According to the organization's 990, Jack Mahler, M.D. was the organization's highest paid employees in 2022, receiving compensation of $2,694,782.
Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Direct mail appeals, Radio, Special events, Print advertisements
Fundraising costs were 31% of related contributions. (Related contributions, which totaled $97,988,013, are donations received as a result of fundraising activities.)
This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on Cystic Fibrosis Foundation's audited financial statements for the year ended December 31, 2022.
Source of Funds
| In-kind contributions | $2,769,562 |
| Special event revenue, net | $56,190,093 |
| Licensing, royalties, and other revenue | $23,469,251 |
| Contributions | $39,028,358 |
| Total Income | $121,457,264 |
Programs: 84% Fundraising: 8% Administrative: 8%
| Total Income | $121,457,264 |
| Total expenses: | $383,468,642 |
| Program expenses | $323,348,817 |
| Fundraising expenses | $30,435,741 |
| Administrative expenses | $29,684,084 |
| Other expenses | $0 |
| Income in Excess of Expenses | $-262,011,378 |
| Beginning Net Assets | $5,416,630,309 |
| Other Changes In Net Assets | $-710,899,915 |
| Ending Net Assets | $4,443,719,016 |
| Total Liabilities | $291,339,974 |
| Total Assets | $4,735,058,990 |
Note 1: In the above financial section, "other changes in net assets" represents net nonoperating investment income.
Note 2: For the year ended December 31, 2022, CFF reported in-kind income of $8,860,237 including cars and auction items ($6,125,530) and real estate ($2,734,707).
An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.
This report is not to be used for fundraising or promotional purposes.
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Review in Progress
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Report completed by:
BBB Wise Giving Alliance