International Essential Tremor Foundation
Standards For Charity Accountability
Governance
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Board Oversight
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Board Size
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Board Meetings
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Board Compensation
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Conflict of Interest
Measuring Effectiveness
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Effectiveness Policy
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Effectiveness Report
Finances
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Program Expenses
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Fundraising Expenses
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Accumulating Funds
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Audit Report
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Detailed Expense Breakdown
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Accurate Expense Reporting
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Budget Plan
Fundraising & Info
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Truthful Materials
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Annual Report
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Website Disclosures
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Donor Privacy
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Cause Marketing Disclosures
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Complaints
International Essential Tremor Foundation does not meet the following 5 Standards for Charity Accountability:
Standard 1 (Oversight of Operations and Staff)
Organizations shall have a board of directors that provides adequate oversight of the charity's operations and its staff. Indication of adequate oversight includes, but is not limited to, regularly scheduled appraisals of the CEO's performance, evidence of disbursement controls such as board approval of the budget, fund raising practices, establishment of a conflict of interest policy, and establishment of accounting procedures sufficient to safeguard charity finances.
The charity does not meet this Standard because:
The charity does not have a board-approved policy that requires the board be informed of contracts and agreements made with outside fundraising agencies or consultants.
Standard 6 (Board Policy on Effectiveness)
Have a board policy of assessing, no less than every two years, the organization's performance and effectiveness and of determining future actions required to achieve its mission.
The charity does not meet this Standard because:
The charity does not have an effectiveness policy in place.
Standard 7 (Board Approval of Written Report on Effectiveness)
Submit to the organization's governing body, for its approval, a written report that outlines the results of the aforementioned performance and effectiveness assessment and recommendations for future actions.
The charity does not meet this Standard because:
The charity does not provide a written report to its board with the results of its effectiveness policy.
Standard 10 (Ending Net Assets)
Avoid accumulating funds that could be used for current program activities. To meet this standard, the charity's unrestricted net assets available for use should not be more than three times the size of the past year's expenses or three times the size of the current year's budget, whichever is higher.
The charity does not meet this Standard because:
The charity currently has total unrestricted assets that are 5.6 times more than their past year's program expenses.
Standard 17 (Web Site Disclosures)
Include on any charity websites that solicit contributions, the same information that is recommended for annual reports, as well as the mailing address of the charity and electronic access to its most recent IRS Form 990.
The charity does not meet this Standard because:
The charity does not have a link to its most recent IRS-990 form.
The BBB Wise Giving Alliance requested but did not receive complete information from the organization and is unable to verify the organization's compliance with the following Standard(s) for Charity Accountability: 15
International Essential Tremor Foundation meets the remaining 14 Standards for Charity Accountability.
Stated Purpose:
The mission of the International Essential Tremor Foundation is to provide hope to the essential tremor (ET) community worldwide through awareness, education, support and research.
Year, State Incorporated:
1992, IL
Also Known As:
IETF
The IETF is Your Voice for Essential Tremor. Through awareness, education, support and research, the IETF is making the world better for people with ET as we work toward finding the safest, most effective treatments and a cure.
For the year ended March 31, 2021, International Essential Tremor Foundation's program expenses were:
| Program Services | $488,219 |
| Total Program Expenses | $488,219 |
Chief Executive
Patrick McCartney, Executive Director
Chair of the Board
Kelly Lyons
Chair's Profession / Business Affiliation
Director of Research - Parkinson's Disease and Movement Disorder Center
Board Size
6
Method(s) Used:
Direct mail appeals, Print advertisements (newspapers, magazines, etc.), Television
This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on International Essential Tremor Foundation's audited financial statements for the year ended March 31, 2021.
Source of Funds
| Research | $2,172,409 |
| Investment Income | $471,863 |
| Annual Donations | $397,877 |
| Memorials and Bequests | $217,782 |
| Special Events | $71,976 |
| Grants | $30,000 |
| Mailing List Rental | $22,852 |
| Other | $5,741 |
| Tremor Talks | $2,517 |
| Contributions | $1,200 |
| Total Income | $3,394,217 |
Programs: 79% Fundraising: 6% Administrative: 15%
| Total Income | $3,394,217 |
| Total expenses: | $620,049 |
| Program expenses | $488,219 |
| Fundraising expenses | $39,355 |
| Administrative expenses | $92,475 |
| Other expenses | $0 |
| Income in Excess of Expenses | $2,774,168 |
| Beginning Net Assets | $3,701,268 |
| Other Changes In Net Assets | $0 |
| Ending Net Assets | $6,475,436 |
| Total Liabilities | $17,149 |
| Total Assets | $6,492,585 |
An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.
This report is not to be used for fundraising or promotional purposes.
RELATED CONTENT
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Meets Standards
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Standards Not Met
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Did Not Disclose
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Review in Progress
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Unable to Verify
Report completed by:
BBB in Nebraska, South Dakota, Kansas Plains & SW Iowa