Give.org logo
CHARITY REVIEW
Issued: April 2023 Expires: April 2025

Spina Bifida Association of New York State

Accredited Charity
Accredited Charity

Meets Standards

Professional Bldg suite #4
Schenectady, NY, 12302

Standards For Charity Accountability

Governance

  1. Board Oversight
  2. Board Size
  3. Board Meetings
  4. Board Compensation
  5. Conflict of Interest

Measuring Effectiveness

  1. Effectiveness Policy
  2. Effectiveness Report

Finances

  1. Program Expenses
  2. Fundraising Expenses
  3. Accumulating Funds
  4. Audit Report
  5. Detailed Expense Breakdown
  6. Accurate Expense Reporting
  7. Budget Plan

Fundraising & Info

  1. Truthful Materials
  2. Annual Report
  3. Website Disclosures
  4. Donor Privacy
  5. Cause Marketing Disclosures
  6. Complaints

Spina Bifida Association of New York State meets the 20 Standards for Charity Accountability.

Stated Purpose:
"To build a better and brighter future for all those impacted by Spina Bifida."

Year, State Incorporated:
1993, NY

Also Known As:
SBANYS

Spina Bifida Association of New York State (SBANYS) provides support services to individuals and families impacted by Spina Bifida and the professionals caring for the community. Our services include public awareness, support, advocacy, information, referrals, education outreach, case management, systems navigation, and programming. Our services ease the challenges associated with living with Spina Bifida and empower those impacted to navigate barriers to health, societal inaccessibility, adversity, and stigma. Services are person- entered and promote a positive quality of life and healthcare outcomes for those impacted. 

For the year ended December 31, 2021, Spina Bifida Association of New York State's program expenses were:

Programs $94,345
Total Program Expenses $94,345

Chair of the Board
Michelle Miller

Chair's Profession / Business Affiliation
Center for Disability Services

Board Size
13

Method(s) Used:
Direct mail appeals, Telephone appeals, Invitations to fund raising events, Print advertisements (newspapers, magazines, etc.), Television, Grant proposals, Cause-related marketing (affinity credit cards, consumer product sales, etc.), Other

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on Spina Bifida Association of New York State's IRS Form 990-EZ for the year ended December 31, 2021.

Source of Funds
Special Events $64,455
Contributions, Gifts and Grants $57,433
Investment Income $9,916
Other Revenue $4,984
Sale of Assets $1,475
Total Income $138,263

Programs: 80% Fundraising: 10% Administrative: 10%

Total Income $138,263
Total expenses: $117,831
  Program expenses $94,345
  Fundraising expenses $11,743
  Administrative expenses $11,743
  Other expenses $0
Income in Excess of Expenses $20,432
Beginning Net Assets $167,562
Other Changes In Net Assets $10,790
Ending Net Assets $198,784
Total Liabilities $3,301
Total Assets $202,085

An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.

This report is not to be used for fundraising or promotional purposes.

RELATED CONTENT




Report completed by:
BBB of Upstate New York