Western Pennsylvania Chapter of the National Hemophilia Foundation does not meet the following 3 Standards for Charity Accountability:
Standard 6 (Board Policy on Effectiveness)
Have a board policy of assessing, no less than every two years, the organization's performance and effectiveness and of determining future actions required to achieve its mission.
WPCNHF does not meet this Standard because:
- The board of directors does not have a written policy stating that, at least every two years, an appraisal be done assessing the organization’s performance and effectiveness and determining future actions required to achieve its mission.
Standard 7 (Board Approval of Written Report on Effectiveness)
Submit to the organization's governing body, for its approval, a written report that outlines the results of the aforementioned performance and effectiveness assessment and recommendations for future actions.
WPCNHF does not meet this Standard because:
- The organization has not completed an effectiveness assessment in the last two years.
Standard 8 (Program Service Expense Ratio)
Spend at least 65% of its total expenses on program activities.
WPCNHF does not meet this Standard because:
- According to its audited financial statements for the year ended June 30, 2020, the organization spent $216,730 or 63% of its total expenses on programs.
The BBB Wise Giving Alliance requested but did not receive complete information from the organization and is unable to verify the organization's compliance with the following Standard(s) for Charity Accountability:
19
Western Pennsylvania Chapter of the National Hemophilia Foundation meets the remaining 16 Standards for Charity Accountability.
Western Pennsylvania Chapter of the National Hemophilia Foundation (WPCNHF) reports that it serves individuals with bleeding disorders across 26 counties in Western Pennsylvania. The organization provides patient assistance to its members, which is free to those with a bleeding disorder. Patient assistance includes referral services to hematologists, nurses, social workers, therapists, insurance specialists for health and psychological assessments, genetic testing, and group and individual counseling. WPCNHF also holds a variety of educational events throughout the year and offers small support groups. In 2020, the organization states that it distributed more than $20,000 in emergency and medical patient assistance, hosted 26 educational events, and held its first Advocacy Ambassador Retreat.
For the year ended June 30, 2020, Western Pennsylvania Chapter of the National Hemophilia Foundation's program expenses were:
| Patient services |
$163,633 |
| Public awareness and education |
$53,097 |
| Total Program Expenses: |
$216,730 |
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Chief Executive
Kara Dornish, Executive Director
-
Compensation*
$51,792
-
Chair of the Board
Brittani Spencer
-
Chair's Profession / Business Affiliation
Annual Giving Officer, Sewickley Academy
-
Board Size
7
-
Paid Staff Size
3
*2019 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Invitations to fund raising events, Print advertisements (newspapers, magazines, etc.), Telephone appeals, Radio, Cause- related marketing (affinity credit cards, consumer product sales, etc.)
Fundraising costs were 23% of related contributions. (Related contributions, which totaled $387,643 are donations received as a result of fundraising activities.)
This organization is tax-exempt under section 501(c) (3) of the Internal Revenue Code.It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on Western Pennsylvania Chapter of the National Hemophilia Foundation's audited financial statements for the year ended June 30, 2020.
| Source of Funds |
| Contributions |
$385,909 |
| Special events |
$1,734 |
| Interest income |
$323 |
| Investment income, net |
($11,760) |
| Total Income |
$376,206 |
- Programs: 64%
- Fundraising: 26%
- Administrative: 10%
| Total Income |
$376,206 |
| Program expenses |
$216,730 |
| Fundraising expenses |
$89,346 |
| Administrative expenses |
$37,166 |
| Other expenses |
$0 |
| Total expenses: |
$343,242 |
| Income in Excess of Expenses |
$32,964 |
| Beginning Net Assets |
$839,734 |
| Other Changes In Net Assets |
$0 |
| Ending Net Assets |
$872,698 |
| Total Liabilities |
$101,482 |
| Total Assets |
$974,180 |
Note: According to WPCNHF's audited financial statements for the year ended June 30, 2020, the organization received $8,464 in contributed goods.