PKD Foundation does not meet the following 2 Standards for Charity Accountability:
Standard 7 (Board Approval of Written Report on Effectiveness)
Submit to the organization's governing body, for its approval, a written report that outlines the results of the aforementioned performance and effectiveness assessment and recommendations for future actions.
PKD Foundation does not meet this Standard because:
- The organization has not completed an effectiveness assessment in the last two years.
Standard 16 (Annual Report)
Have an annual report available to all, on request, that includes: (a) the organization's mission statement, (b) a summary of the past year's program service accomplishments, (c) a roster of the officers and members of the board of directors, (d) financial information that includes (i) total income in the past fiscal year, (ii) expenses in the same program, fund raising and administrative categories as in the financial statements, and (iii) ending net assets.
PKD Foundation does not meet this Standard because the 2020 annual report did not include:
- A roster of the board of directors.
PKD Foundation meets the remaining 18 Standards for Charity Accountability.
The PKD Foundation reports that it works to find a treatment and cure for polycystic kidney disease (PKD) and to improve the lives of those it affects. To find a treatment for PKD, the organization promotes research, education, advocacy; and provides support and awareness on a national level, along with direct services to local communities across the United States. The PKD Foundation reports that it supports more than 55 volunteer-led Chapters across the United States through peer mentor programs, hope lines, disease management handbooks, online forums, and webinars. The PKD Foundation also funds basic and clinical research and nephrology fellowships. Some ($83,744 or 2%) of PKD Foundation?s program activities are carried out in conjunction with fundraising appeals.
For the year ended June 30, 2020, PKD Foundation's program expenses were:
Research |
$2,873,556 |
Awareness and advocacy |
$1,554,295 |
Education and support |
$1,135,988 |
Total Program Expenses: |
$5,563,839 |
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Chief Executive
Andrew Betts, President and Chief Executive Officer
-
Compensation*
$322,879
-
Chair of the Board
Robert Roth
-
Chair's Profession / Business Affiliation
Retired, Chief Financial Officer, Home Box Office Inc. (HBO)
-
Board Size
13
-
Paid Staff Size
25
*2019 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Invitations to fund raising events, Planned giving arrangements, Print advertisements (newspapers, magazines, etc.), Telephone appeals
PKD Foundation incurred joint costs of $208,477 for informational materials and activities that included fundraising materials. Of those costs $124,703 was allocated to fundraising expenses and $83,774 was allocated to program expenses, .
Fundraising costs were 7% of related contributions. (Related contributions, which totaled $16,099,916, are donations received as a result of fundraising activities.)
This organization is tax-exempt under section 501(c) (3) of the Internal Revenue Code.It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on PKD Foundation's audited financial statements for the year ended June 30, 2020.
Source of Funds |
Contributions |
$15,651,057 |
Gifts-in-kind |
$448,859 |
Investment income, net |
$240,967 |
Unrealized gain on investments, net |
$154,288 |
Miscellaneous income |
$3,372 |
Total Income |
$16,498,543 |
- Programs: 75%
- Fundraising: 14%
- Administrative: 11%
Total Income |
$16,498,543 |
Program expenses |
$5,563,839 |
Fundraising expenses |
$1,053,315 |
Administrative expenses |
$835,062 |
Other expenses |
$0 |
Total expenses: |
$7,452,216 |
Income in Excess of Expenses |
$9,046,327 |
Beginning Net Assets |
$8,754,056 |
Other Changes In Net Assets |
$0 |
Ending Net Assets |
$17,800,383 |
Total Liabilities |
$3,109,449 |
Total Assets |
$20,909,832 |
Note: According to the organization's audited financial statements for the year ended June 30, 2020, PKD Foundation received in-kind gifts totaling $448,859 in the form of volunteer services ($340,248) and advertising ($108,611).