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CHARITY REVIEW
Issued: January 2025 Expires: January 2027

Northern Ohio Hemophilia Foundation

Standards Not Met
Standards Not Met
7 16 17
(216) 834-0051
17407 Lorain Avenue #206
Cleveland, OH, 44111
https://gobdf.org/
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Standards For Charity Accountability

Governance

  1. Board Oversight
  2. Board Size
  3. Board Meetings
  4. Board Compensation
  5. Conflict of Interest

Measuring Effectiveness

  1. Effectiveness Policy
  2. Effectiveness Report

Finances

  1. Program Expenses
  2. Fundraising Expenses
  3. Accumulating Funds
  4. Audit Report
  5. Detailed Expense Breakdown
  6. Accurate Expense Reporting
  7. Budget Plan

Fundraising & Info

  1. Truthful Materials
  2. Annual Report
  3. Website Disclosures
  4. Donor Privacy
  5. Cause Marketing Disclosures
  6. Complaints

Northern Ohio Hemophilia Foundation does not meet the following 3 Standards for Charity Accountability:

Standard 7 (Board Approval of Written Report on Effectiveness)
Submit to the organization's governing body, for its approval, a written report that outlines the results of the aforementioned performance and effectiveness assessment and recommendations for future actions.

NOHF does not meet this Standard because:

  • The organization has not completed an effectiveness assessment in the last two years.

Standard 16 (Annual Report)
Have an annual report available to all, on request, that includes: (a) the organization's mission statement, (b) a summary of the past year's program service accomplishments, (c) a roster of the officers and members of the board of directors, (d) financial information that includes (i) total income in the past fiscal year, (ii) expenses in the same program, fund raising and administrative categories as in the financial statements, and (iii) ending net assets.

NOHF does not meet this Standard because the 2023 annual report did not include:

  • 2023 Financial summary

Standard 17 (Web Site Disclosures)
Include on any charity websites that solicit contributions, the same information that is recommended for annual reports, as well as the mailing address of the charity and electronic access to its most recent IRS Form 990.

NOHF does not meet this Standard because the organization’s website, https://gobdf.org/, does not include all of the recommended information for those charity websites that solicit for donations. Specifically, it does not include:

  • Electronic access to the organization’s 2022 IRS Form 990.
  • A summary of 2023 program service accomplishments.

The BBB Wise Giving Alliance requested but did not receive complete information from the organization and is unable to verify the organization's compliance with the following Standard(s) for Charity Accountability: 3, 10, 11

Northern Ohio Hemophilia Foundation meets the remaining 14 Standards for Charity Accountability.

Stated Purpose:
"to enhance the quality of life for people with genetic bleeding disorders and their families, through advocacy, education, research and other constituency services."

Year, State Incorporated:
1955, OH

The Northern Ohio Hemophilia Foundation (NOHF) serves members of the bleeding disorders community in the 24 counties of northeast Ohio. The organization offers a MedicAlert membership and emblem, access to dental programs, camp and educational scholarships, counseling reimbursement assistance, wellness and safe sports programs (yoga, golf, swimming), educational programs, emergency financial assistance, and travel stipends to regional membership programs.

For the year ended December 31, 2022, Northern Ohio Hemophilia Foundation's program expenses were:

Program services $464,956
Total Program Expenses $464,956

Chair of the Board
Kendra Adams

Chair's Profession / Business Affiliation
Administration, Cleveland Clinic

Board Size
7

Paid Staff Size
4

*2021 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.

Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Direct mail appeals

Fundraising costs were 8% of related contributions. (Related contributions, which totaled $781,925, are donations received as a result of fundraising activities.)

This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.

The following information is based on Northern Ohio Hemophilia Foundation's IRS Form 990 for the year ended December 31, 2022.

Source of Funds
Contributions $718,512
Fundraising events, net $63,413
Program revenue $20,203
Investment loss $-46,590
Total Income $755,538

Programs: 83% Fundraising: 10% Administrative: 7%

Total Income $755,538
Total expenses: $559,893
  Program expenses $464,956
  Fundraising expenses $54,608
  Administrative expenses $40,329
  Other expenses $0
Income in Excess of Expenses $195,645
Beginning Net Assets $927,918
Other Changes In Net Assets $0
Ending Net Assets $1,123,563
Total Liabilities $73,180
Total Assets $1,196,743

An organization may change its practices at any time without notice. A copy of this report has been shared with the organization prior to publication. It is not intended to recommend or deprecate, and is furnished solely to assist you in exercising your own judgment. If the report is about a charity and states the charity meets or does not meet the Standards for Charity Accountability, it reflects the results of an evaluation of information and materials provided voluntarily by the charity. The name Better Business Bureau is a registered service mark of the International Association of Better Business Bureaus.

This report is not to be used for fundraising or promotional purposes.

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Report completed by:
BBB Wise Giving Alliance