Lupus Foundation of America meets the 20 Standards for Charity Accountability.
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Year, State Incorporated
1977, DC
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Affiliates
Lupus America Communities
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Stated Purpose
"to improve the quality of life for all people affected by lupus through programs of research, education, support and advocacy."
Lupus Foundation of America (LFA) aims to solve the mystery of lupus while giving support to those who suffer from its impact. Through the organization?s National Research Program, LFA stimulates and sponsors basic, clinical, behavioral, translational and epidemiological research on lupus. LFA reports it also leads scientific initiatives, directly funds lupus researchers and advocates for increased government funding of lupus research studies. In addition, the organization works to increase public awareness and understanding of lupus, improve the early diagnosis and treatment of the disease, and help people living with lupus improve their quality of life. For physicians and other health care professionals, LFA conducts and sponsors professional education programs and seminars, in addition to developing educational curriculum for nurses and training clinical investigators on instruments to measure lupus disease activity. Through its national network of affiliated chapters, offices, and community support groups, the organization provides information and education about lupus, direct services through health educators, and live and online educational programs. Some education content, including podcasts and research summaries are generated in a variety of formats and languages including Spanish and Mandarin. Some ($743,289 or 6%) of LFA?s program activities are carried out in conjunction with fundraising appeals.
For the year ended September 30, 2020, Lupus Foundation of America's program expenses were:
Public information and education |
$5,100,940 |
Network support and services |
$2,876,830 |
Research |
$2,777,767 |
Patient education and support |
$705,225 |
Professional relations and education |
$8,211 |
Total Program Expenses: |
$11,468,973 |
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Chief Executive
Stevan W. Gibson, President and Chief Executive Officer
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Compensation*
$324,777
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Chair of the Board
Andrew Brophy
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Chair's Profession / Business Affiliation
President, Brophy Properties, Inc.
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Board Size
15
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Paid Staff Size
60
*2019 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Invitations to fund raising events, Membership appeals, Planned giving arrangements, Cause- related marketing (affinity credit cards, consumer product sales, etc.)
LFA incurred joint costs of $1,391,497 for informational materials and activities that included fundraising materials. Of those costs $743,280 was allocated to program expenses, $577,280 was allocated to fundraising expenses, and $70,350 was allocated to administrative expenses.
Fundraising costs were 11% of related contributions. (Related contributions, which totaled $10,935,905, are donations received as a result of fundraising activities.)
This organization is tax-exempt under section 501(c) (3) of the Internal Revenue Code.It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on Lupus Foundation of America's audited financial statements for the year ended September 30, 2020.
Source of Funds |
Grants and contributions |
$8,916,299 |
Special events, net |
$1,857,710 |
Program service revenue |
$946,907 |
Wills and bequests |
$138,450 |
Membership dues |
$103,168 |
Investment income, net |
$32,739 |
In-kind contributions |
$23,446 |
Royalty income |
$13,622 |
Other income |
$7,980 |
Total Income |
$12,040,321 |
- Programs: 83%
- Administrative: 9%
- Fundraising: 8%
Total Income |
$12,040,321 |
Program expenses |
$11,468,973 |
Fundraising expenses |
$1,175,084 |
Administrative expenses |
$1,191,540 |
Other expenses |
$0 |
Total expenses: |
$13,835,597 |
Income in Excess of Expenses |
$-1,795,276 |
Beginning Net Assets |
$5,393,919 |
Other Changes In Net Assets |
$27,029 |
Ending Net Assets |
$3,625,672 |
Total Liabilities |
$4,633,955 |
Total Assets |
$8,259,627 |
Note 1: As noted in the above financial section, "other changes in net assets" refers to a change in value of a perpetual trust held by a trustee.
Note 2: According to the organization's audited financial statements for the year ended September 30, 2020, LFA received in-kind contributions totaling $23,446 in the form of donated vehicles.