Huntington's Disease Society of America meets the 20 Standards for Charity Accountability.
The Huntington's Disease Society of America (HDSA) reports that it currently has 34 chapters throughout the United States, staffed entirely by volunteers. Each chapter holds educational events, coordinates with social workers, and runs support groups for local families with HD; raises funds through events that are used to support the organization's programs of research, care and education; and strives to build greater awareness of HD in the general public through outreach to local press and civic groups.
For the year ended December 31, 2019, Huntington's Disease Society of America's program expenses were:
Family services |
$2,976,990 |
Education |
$1,833,920 |
Research |
$1,753,479 |
Community outreach |
$1,177,664 |
Total Program Expenses: |
$7,742,053 |
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Chief Executive
Louise Vetter, President and Chief Executive Officer
-
Compensation*
$382,342
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Chair of the Board
Victor Sung
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Chair's Profession / Business Affiliation
Neurologist, Director, UAB/HDSA Huntington's Disease Center of Excellence
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Board Size
17
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Paid Staff Size
26
*2019 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Invitations to fund raising events, Planned giving arrangements
Fundraising costs were 16% of related contributions. (Related contributions, which totaled $11,612,186, are donations received as a result of fundraising activities.)
This organization is tax-exempt under section 501(c) (3) of the Internal Revenue Code.It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on Huntington's Disease Society of America's audited financial statements for the year ended December 31, 2019.
Source of Funds |
Public donations |
$4,209,337 |
Special events, net |
$4,158,871 |
Foundation grants and corporate contributions |
$2,568,769 |
Donated services and materials |
$404,183 |
Federated campaign |
$271,027 |
Other income |
$162,359 |
Investment income, net |
$26,227 |
Total Income |
$11,800,773 |
- Programs: 77%
- Fundraising: 18%
- Administrative: 5%
Total Income |
$11,800,773 |
Program expenses |
$7,742,053 |
Fundraising expenses |
$1,837,073 |
Administrative expenses |
$578,718 |
Other expenses |
$0 |
Total expenses: |
$10,157,844 |
Income in Excess of Expenses |
$1,642,929 |
Beginning Net Assets |
$8,616,925 |
Other Changes In Net Assets |
$0 |
Ending Net Assets |
$10,259,854 |
Total Liabilities |
$1,653,903 |
Total Assets |
$11,913,757 |
Note: According to HDSA's 2019 audited financial statements, the organization received in-kind contributions totaling $404,183 in the form of donated auction items ($400,343) and donated space ($3,840).