Epilepsy Association of Western and Central Pennsylvania does not meet the following 2 Standards for Charity Accountability:
Standard 6 (Board Policy on Effectiveness)
Have a board policy of assessing, no less than every two years, the organization's performance and effectiveness and of determining future actions required to achieve its mission.
EAWCP does not meet this Standard because:
- The board of directors does not have a written policy stating that, at least every two years, an appraisal be done assessing the organization’s performance and effectiveness and determining future actions required to achieve its mission.
Standard 14 (Budget)
Have a board-approved annual budget for its current fiscal year, outlining projected expenses for major program activities, fund raising, and administration.
EAWCP does not meet this Standard because, when the organization provided 2020 budget information, it indicated that the budget:
- Included total projected program service expenses, however, did not break these expenses down by major program category including public health education, professional education and training, community services, and patient services.
The BBB Wise Giving Alliance requested but did not receive complete information from the organization and is unable to verify the organization's compliance with the following Standard(s) for Charity Accountability:
15
Epilepsy Association of Western and Central Pennsylvania meets the remaining 17 Standards for Charity Accountability.
Epilepsy Association of Western and Central Pennsylvania (EAWCP) reports that it works to improve the quality of life for individuals with epilepsy and seizure disorders throughout western and central Pennsylvania. Programs include emergency medication assistance, summer camps, respite care, support groups, sleep/movement monitors, training for teachers and school nurses, patient education, postsecondary academic and vocational scholarships, and professional symposiums. EAWCP maintains a resource library for individuals with epilepsy and their families and distributes educational brochures to the general public to further understand epilepsy. In 2018, the organization states that it trained 2,154 students, 1,348 first responders, and 1,203 teachers to recognize and respond to seizures. In addition, EAWCP reports that it served 1,176 individuals with epilepsy, provided 237 respite care hours, offered 25 support group meetings, held 23 educational events, and granted 10 high school scholarships.
For the year ended June 30, 2019, Epilepsy Association of Western and Central Pennsylvania's program expenses were:
| Patient services |
$497,604 |
| Community services |
$493,516 |
| Public health education |
$311,598 |
| Professional education and training |
$220,634 |
| Total Program Expenses: |
$1,523,352 |
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Chief Executive
Peggy Beem Jelley, President and Chief Executive Officer
-
Compensation*
$105,000
-
Chair of the Board
Joyce Bender
-
Chair's Profession / Business Affiliation
President and Chief Executive Officer, Bender Consulting Services, Inc.
-
Board Size
19
-
Paid Staff Size
12
*2018 compensation, as reported by the organization, includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Invitations to fund raising events, Membership appeals, Planned giving arrangements, Cause- related marketing (affinity credit cards, consumer product sales, etc.)
Fundraising costs were 16% of related contributions. (Related contributions, which totaled $1,418,167 are donations received as a result of fundraising activities.)
This organization is tax-exempt under section 501(c) (3) of the Internal Revenue Code.It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on Epilepsy Association of Western and Central Pennsylvania's audited financial statements for the year ended June 30, 2019.
| Source of Funds |
| Government grants |
$767,814 |
| Special events, net |
$496,638 |
| Contributions |
$153,715 |
| Investment income |
$150,220 |
| Realized and unrealized gain on investments, net |
$73,771 |
| Program and activity fees |
$5,081 |
| Total Income |
$1,647,239 |
- Programs: 85%
- Fundraising: 13%
- Administrative: 2%
| Total Income |
$1,647,239 |
| Program expenses |
$1,523,352 |
| Fundraising expenses |
$230,243 |
| Administrative expenses |
$40,635 |
| Other expenses |
$0 |
| Total expenses: |
$1,794,230 |
| Income in Excess of Expenses |
$-146,991 |
| Beginning Net Assets |
$5,904,956 |
| Other Changes In Net Assets |
$0 |
| Ending Net Assets |
$5,757,965 |
| Total Liabilities |
$190,390 |
| Total Assets |
$5,948,355 |