Barth Syndrome Foundation
Meets Standards
Standards For Charity Accountability
Governance
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Board Oversight
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Board Size
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Board Meetings
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Board Compensation
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Conflict of Interest
Measuring Effectiveness
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Effectiveness Policy
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Effectiveness Report
Finances
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Program Expenses
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Fundraising Expenses
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Accumulating Funds
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Audit Report
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Detailed Expense Breakdown
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Accurate Expense Reporting
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Budget Plan
Fundraising & Info
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Truthful Materials
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Annual Report
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Website Disclosures
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Donor Privacy
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Cause Marketing Disclosures
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Complaints
Barth Syndrome Foundation meets the 20 Standards for Charity Accountability.
Stated Purpose:
"to save lives through education, advances in treatment, and finding a cure for Barth syndrome."
Year, State Incorporated:
2000, DE
Barth Syndrome Foundation (BSF) reports that it disseminates information about research and phenotype of the disorder. BSF's principal program activities include family support, research, outreach, education, physician awareness, a registry and repository, and the facilitation of advances in science and medicine.
For the year ended December 31, 2021, Barth Syndrome Foundation's program expenses were:
Communication and awareness: $132,154
Family services: $96,953
Advocacy and awareness: $95,538
Barth registry and repository: $18,816
Research grants: $204,594
Science and medicine: $193,353
Total Program Expenses: $741,408
Chief Executive
Emily Milligan, Executive Director
Compensation*
$179,469
Chair of the Board
Katherine R. McCurdy
Chair's Profession / Business Affiliation
Board Size
14
Paid Staff Size
6
*2021 compensation includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances.
Method(s) Used:
Direct mail appeals, Grant proposals, Internet, Direct mail appeals, Radio, Special events, Print advertisements, Corporate solicitation
Fundraising costs were 6% of related contributions. (Related contributions, which totaled $1,211,518, are donations received as a result of fundraising activities.)
This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on Barth Syndrome Foundation's audited financial statements for the year ended December 31, 2021.
Source of Funds
| Contributions | $1,151,518 |
| Grant income | $60,000 |
| Interest and dividends | $43,567 |
| Other income | $2,818 |
| Investment return, net | $173,879 |
| Total Income | $1,431,782 |
Programs: 73% Fundraising: 7% Administrative: 19%
| Total Income | $1,431,782 |
| Total expenses: | $1,010,732 |
| Program expenses | $741,408 |
| Fundraising expenses | $73,591 |
| Administrative expenses | $195,733 |
| Other expenses | $0 |
| Income in Excess of Expenses | $421,050 |
| Beginning Net Assets | $5,280,639 |
| Other Changes In Net Assets | $0 |
| Ending Net Assets | $5,701,689 |
| Total Liabilities | $285,252 |
| Total Assets | $5,986,941 |
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RELATED CONTENT
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Meets Standards
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Standards Not Met
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Did Not Disclose
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Review in Progress
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Unable to Verify
Report completed by:
BBB Wise Giving Alliance