Children's Brain Tumor Foundation
Standards Not Met
274 Madison Avenue
New York, NY 10016
274 Madison Avenue
New York, NY 10016
Standards Not Met
This organization does not meet one or more of the 20 Standards for Charity Accountability. Click the conclusions section below for more information.
- Meets Standards
- Standards Not Met
- Did Not Disclose
- Review In Progress
- Unable to Verify
Standards For Charity Accountability
Oversight of Operations and Staff: Standard 1
Organizations shall have a board of directors that provides adequate oversight of the charity's operations and its staff. Indication of adequate oversight includes, but is not limited to, regularly scheduled appraisals of the CEO's performance, evidence of disbursement controls such as board approval of the budget, fund raising practices, establishment of a conflict of interest policy, and establishment of accounting procedures sufficient to safeguard charity finances.
Number of Board Members: Standard 2
Soliciting organizations shall have a board of directors with a minimum of five voting members.
Frequency and Attendance of Board Meetings: Standard 3
An organization shall have a minimum of three evenly spaced meetings per year of the full governing body with a majority in attendance, with face-to-face participation. A conference call of the full board can substitute for one of the three meetings of the governing body. For all meetings, alternative modes of participation are acceptable for those with physical disabilities.
Compensated Board Members: Standard 4
Not more than one or 10% (whichever is greater) directly or indirectly compensated person(s) serving as voting member(s) of the board. Compensated members shall not serve as the board's chair or treasurer.
Conflict of Interest
Conflict of Interest: Standard 5
No transaction(s) in which any board or staff members have material conflicting interests with the charity resulting from any relationship or business affiliation. Factors that will be considered when concluding whether or not a related party transaction constitutes a conflict of interest and if such a conflict is material, include, but are not limited to: any arm's length procedures established by the charity; the size of the transaction relative to like expenses of the charity; whether the interested party participated in the board vote on the transaction; if competitive bids were sought and whether the transaction is one-time, recurring or ongoing.
Board Policy on Effectiveness: Standard 6
Have a board policy of assessing, no less than every two years, the organization's performance and effectiveness and of determining future actions required to achieve its mission.
Board Approval of Written Report on Effectiveness: Standard 7
Submit to the organization's governing body, for its approval, a written report that outlines the results of the aforementioned performance and effectiveness assessment and recommendations for future actions.
Program Service Expense Ratio: Standard 8
Spend at least 65% of its total expenses on program activities.
Fund Raising Expenses
Fund Raising Expense Ratio: Standard 9
Spending should be no more than 35% of related contributions on fund raising. Related contributions include donations, legacies, and other gifts received as a result of fund raising efforts.
Ending Net Assets: Standard 10
Avoid accumulating funds that could be used for current program activities. To meet this standard, the charity's unrestricted net assets available for use should not be more than three times the size of the past year's expenses or three times the size of the current year's budget, whichever is higher.
Financial Statements: Standard 11
Make available to all, on request, complete annual financial statements prepared in accordance with generally accepted accounting principles. When total annual gross income exceeds $500,000, these statements should be audited in accordance with generally accepted auditing standards. For charities whose annual gross income is less than $500,000, a review by a certified public accountant is sufficient to meet this standard. For charities whose annual gross income is less than $250,000, an internally produced, complete financial statement is sufficient to meet this standard.
Detailed Expense Breakdown
Detailed Functional Breakdown of Expenses: Standard 12
Include in the financial statements a breakdown of expenses (e.g., salaries, travel, postage, etc.) that shows what portion of these expenses was allocated to program, fund raising, and administrative activities. If the charity has more than one major program category, the schedule should provide a breakdown for each category.
Accurate Expense Reporting
Accuracy of Expenses in Financial Statements: Standard 13
Accurately report the charity's expenses, including any joint cost allocations, in its financial statements. For example, audited or unaudited statements which inaccurately claim zero fund raising expenses or otherwise understate the amount a charity spends on fund raising, and/or overstate the amount it spends on programs will not meet this standard.
Budget: Standard 14
Have a board-approved annual budget for its current fiscal year, outlining projected expenses for major program activities, fund raising, and administration.
Fund Raising & Info
Misleading Appeals: Standard 15
Have solicitations and informational materials, distributed by any means, that are accurate, truthful and not misleading, both in whole and in part. Appeals that omit a clear description of program(s) for which contributions are sought will not meet this standard. A charity should also be able to substantiate that the timing and nature of its expenditures are in accordance with what is stated, expressed, or implied in the charity's solicitations.
Annual Report: Standard 16
Have an annual report available to all, on request, that includes: (a) the organization's mission statement, (b) a summary of the past year's program service accomplishments, (c) a roster of the officers and members of the board of directors, (d) financial information that includes (i) total income in the past fiscal year, (ii) expenses in the same program, fund raising and administrative categories as in the financial statements, and (iii) ending net assets.
Web Site Disclosures: Standard 17
Include on any charity websites that solicit contributions, the same information that is recommended for annual reports, as well as the mailing address of the charity and electronic access to its most recent IRS Form 990.
Privacy for Written Appeals & Internet Privacy: Standard 18
Cause Marketing Disclosures
Cause Related Marketing: Standard 19
Clearly disclose how the charity benefits from the sale of products or services (i.e., cause-related marketing) that state or imply that a charity will benefit from a consumer sale or transaction. Such promotions should disclose, at the point of solicitation: (a) the actual or anticipated portion of the purchase price that will benefit the charity (e.g., 5 cents will be contributed to abc charity for every xyz company product sold), (b) the duration of the campaign (e.g., the month of October), (c) any maximum or guaranteed minimum contribution amount (e.g., up to a maximum of $200,000).
Complaints: Standard 20
Children's Brain Tumor Foundation meets the remaining 0 Standards for Charity Accountability.
Year, State Incorporated
"to improve the treatment, quality of life and the long term outlook for children with brain and spinal cord tumors through research, support, education, and advocacy to families and survivors."
CBTF provides children and families with information through a toll-free line, quarterly newsletters, Facebook page, and website. The organization also provides referrals, counseling, and support to families and professionals. In 2013, CBTF reports that over 1,200 callers received support, answers, and referrals. CBTF facilitates connections with experienced parents and survivors who can provide support, knowledge, and understanding to other parents and survivors who are in need. CBTF's program F2F (Family 2 Family) offers publications, information, and age appropriate toys when they are diagnosed. Through the CBTF website, the organization offers Jenna's corner, an online discussion and support group forum for families and professionals. One can join specific professional moderated discussion groups and post comments at any time. Jenna's Corner also includes professional discussions, both live and through an online message board. Discussions range from changes in treatment to educational issues after cancer.
For the year ended December 31, 2012, CBTF's program expenses were:
|Total Program Expenses:||$1,368,037|
Governance & Staff
Mark Edmiaston, President
Chair of the Board
Chair's Profession / Business Affiliation
Owner, Still Motion Media, Producer of Mobistories
Paid Staff Size
*2012 compensation, as reported by the charity, includes annual salary and, if applicable, benefit plans, expense accounts, and other allowances. In 2012, former Executive Director Joseph Fay received $171,089 in compensation.
Direct mail, special events, and Internet appeals.
Fund raising costs were 20% of related contributions. (Related contributions, which totaled $1,997,896, are donations received as a result of fund raising activities.)
This organization is tax-exempt under section 501(c)(3) of the Internal Revenue Code. It is eligible to receive contributions deductible as charitable donations for federal income tax purposes.
The following information is based on CBTF's audited financial statements for the year ended December 31, 2012.
- Programs: 70%
- Fundraising: 20%
- Administrative: 10%
|Income in Excess of Expenses||125,716|
|Beginning Net Assets||1,132,080|
|Ending Net Assets||1,257,796|
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